CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14708 Godin Leisure-Time Exercise Questionnaire - strenuous exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing strenuous exercise (e.g., running, jogging, hockey, football, soccer, squash, basketball, cross country skiing, judo, roller skating, vigorous swimming, vigorous long distance bicycling)

 Supplemental Godin Leisure-Time Exercise Questionnaire False Multiple Sclerosis Multiple Sclerosis
C14709 Godin Leisure-Time Exercise Questionnaire - moderate exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing moderate exercise (e.g., fast walking, baseball, tennis, easy bicycling, volleyball, badminton, easy swimming, alpine skiing, popular and folk dancing)

 Supplemental Godin Leisure-Time Exercise Questionnaire False Multiple Sclerosis Multiple Sclerosis
C14710 Godin Leisure-Time Exercise Questionnaire - mild exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing mild exercise (e.g., yoga, archery, fishing from river bank, bowling, horseshoes, golf, snow-mobiling, easy walking)

 Supplemental Godin Leisure-Time Exercise Questionnaire False Multiple Sclerosis Multiple Sclerosis
C14711 Godin Leisure-Time Exercise Questionnaire - exercise per week scale

The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly

 Supplemental Godin Leisure-Time Exercise Questionnaire False Multiple Sclerosis Multiple Sclerosis
C10980 Childbearing potential indicator

Indicator of whether the participant is of childbearing potential

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C10981 Birth control method type

The participant's method of birth control

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16008 Birth control indicator

Indicates if participant uses birth control

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16163 Hormone therapy name

The name of the hormone therapy taken by the participant

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16164 Hormonal therapy start date/time

The date and time (if applicable and known) the participant started hormonal therapy

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16165 Hormonal therapy stop date/time

The date and time (if applicable and known) the participant stopped hormonal therapy

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16167 Given birth or fathered a child indicator

Indicates whether participant/subject has ever given birth or fathered a child

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16168 Pregnancy self or contribute sperm number

Number of each pregnancy for the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16169 Pregnancy outcome type

Type of outcome of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16170 Menstrual period occurrence indicator

Indicates whether participant has ever had a menstrual period

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16171 Menstrual period first occurrence age value

Youngest age the participant had a menstrual period, otherwise known as the age of menarche

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16172 Pregnant current indicator

Indicator of whether the participant is currently pregnant

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16173 Pregnancy estimate delivery date and time

The date and time (if applicable) the participant is estimated to deliver the pregnancy

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16174 Menopause indicator

Indicates whether participant is currently menopausal

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16175 Menstrual period last date

Date of the participant's last menstrual period

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16176 Hormone therapy indicator

Indicates whether participant/subject has taken hormonal therapy

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16177 Post-menopausal indicator

Indicates whether participant is post-menopausal

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16178 Post-menopausal cause type

Type of cause or reason for the post-menopausal period in the participant

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16179 Post-menopausal surgery date/time

The date and time (if applicable and known) of the surgery that induced the post-menopausal period

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16180 Hormone-related syndrome indicator

Indicator of whether the participant has known hormone-related/endocrine syndromes or disorders

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16193 Pregnancy outcome date/time

The date and time (if applicable and known) of the outcome (i.e., delivery of live birth, miscarriage, etc.) of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
Displaying 126 - 150 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.