CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1291-C15511	C15511	Imaging tissue integrity type performed indicator	Whether the imaging type was performed on specific brain tissue	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15515	C15515	Imaging tissue integrity whole brain measurement indicator	Whether measurements of the tissue integrity of the whole brain were taken	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15516	C15516	Imaging tissue integrity normal appearing white matter measurement indicator	Whether measurements of the tissue integrity of normal appearing white matter were taken	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15517	C15517	Imaging tissue integrity normal appearing gray matter measurement indicator	Whether measurements of the tissue integrity of normal appearing gray matter were taken	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15518	C15518	Imaging tissue integrity other regional measurements indicator	Whether measurements of the tissue integrity of other brain regions were taken	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15646	C15646	Imaging posterior fossa lesion count	Total number of focal T2-hyperintense brain lesions that are in contact with the posterior fossa (brainstem or cerebellum)	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15650	C15650	Imaging basal ganglia lesion count	Total number of lesions located in the basal ganglia (excluding the thalamus)	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15652	C15652	Imaging tissue integrity measure technique type	Type of imaging sequence used	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C17448	C17448	Imaging measurement region type	Region of imaging measurement	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C18589	C18589	Imaging spinal cord area value	Area of the spinal cord	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C18694	C18694	Imaging diffusion measurement other text	The free-text field related to 'Imaging diffusion measurement type' specifying other text. Type of diffusion tensor imaging (DTI) measurement	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C18999	C18999	Imaging T2W image technique other text	The free-text field related to 'Imaging T2W image technique type' specifying other text. Method used to determine the total volume of white matter hyperintensities on T2-weighted image	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19000	C19000	Imaging Gadolinium-enhancing lesion technique other text	The free-text field related to 'Imaging Gadolinium-enhancing lesion technique type' specifying other text. Method used to determine the lesions for gadolinium (Gd)-enhancing lesions on T1+Gd image	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19001	C19001	Imaging T1 hypointense lesion technique other text	The free-text field related to 'Imaging T1 hypointense lesion technique type' specifying other text. Method used to determine the total number of T1 hypointense lesions	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19002	C19002	Imaging brain volume technique other text	The free-text field related to 'Imaging brain volume technique type' specifying other text. Image analysis method used to calculate whole brain volume	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19003	C19003	Imaging brain volume fraction technique other text	The free-text field related to 'Imaging brain volume fraction technique type' specifying other text. Image analysis method used to calculate whole brain volume fraction	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19004	C19004	Imaging magnetization transfer ratio (MTR) measurement other text	The free-text field related to 'Imaging magnetization transfer ratio (MTR) measurement type' specifying other text. Magnetization transfer ratio measure	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19005	C19005	Imaging gray matter lesion technique other text	The free-text field related to 'Imaging gray matter lesion technique type' specifying other text. Method used to determine the number of lesions	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19006	C19006	Imaging brain measured structure other text	The free-text field related to 'Imaging brain measured structure type' specifying other text. The structure of the brain volume measurement	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19007	C19007	Imaging spinal cord lesion technique other text	The free-text field related to 'Imaging spinal cord lesion technique type' specifying other text. Method used to determine the number of lesions located in the spinal cord	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19008	C19008	Imaging spinal cord volume/cross-sectional area technique other text	The free-text field related to 'Imaging spinal cord volume/cross-sectional area technique type' specifying other text. Method used to determine the cord cross-sectional area or volume as a measure of cord atrophy	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19025	C19025	Imaging tissue integrity measure technique other text	The free-text field related to 'Imaging tissue integrity measure technique type' specifying other text. Type of imaging sequence used	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C02400	C02400	Brain volumetric analysis measurement	Measured brain volume in cubic centimeters	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.