CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15355 Optical coherence tomography (OCT) ganglion cell layer thickness performed indicator

The indicator for whether ganglion cell layer thickness (segmentation) optical coherence tomography (OCT) (Cirrus-Zeiss) was performed

 Exploratory Imaging Optical Coherence Tomography (OCT) Information False Multiple Sclerosis Multiple Sclerosis
C15380 Imaging retinal nerve fiber layer thickness in temporal quadrant abnormal status

This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the temporal quadrant of the eye is thin compared to the rest of the population

 Exploratory Imaging OCT Analysis - Spectralis Report Analysis False Multiple Sclerosis Multiple Sclerosis
C10856 Grip strength unit of measure

Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded

 Exploratory Grip Strength Fatigue False Multiple Sclerosis Multiple Sclerosis
C15342 Optical coherence tomography low contrast Sloan letter chart 1.25 binocular count

The number of letters read correctly at low contrast on a Sloan letter chart at 1.25% at 2 meters

 Exploratory Imaging OCT Analysis - Contrast and Visual Acuity False Multiple Sclerosis Multiple Sclerosis
C17402 Site name

The name of the site for the study

 Exploratory Fatigue/Activity Record and Diary False Multiple Sclerosis Multiple Sclerosis
C15359 Imaging average macular thickness abnormal status

The indicator is the average macular thickness is abnormally low

 Exploratory Imaging OCT Analysis -Cirrus Macular Thickness False Multiple Sclerosis Multiple Sclerosis
C11523 Bowel Control Scale (BWCS) - sum score value

Sum of the score for questions in the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Multiple Sclerosis Multiple Sclerosis
C15504 Imaging spinal cord volume/cross-sectional area technique type

Method used to determine the cord cross-sectional area or volume as a measure of cord atrophy

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C08147 Data source

Source of the data provided on the case report form

 Exploratory History Data Source and Reliability False Multiple Sclerosis Multiple Sclerosis
C15418 Imaging gray matter volume fraction value

Volume of gray matter in the brain or ratio of gray matter volume to total intracranial volume or other head-size normalization volume

 Exploratory Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C15432 Imaging change in white matter volume value

Absolute change in white matter volume as compared to a reference scan acquired at an earlier timepoint

 Exploratory Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C11515 Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale

The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Multiple Sclerosis Multiple Sclerosis
C15347 Optical coherence tomography average retinal nerve fiber layer thickness measurement

Average overall retinal nerve fiber layer (RNFL) thickness

 Exploratory Imaging OCT Analysis - RNFL Thickness Analysis False Multiple Sclerosis Multiple Sclerosis
C15460 Imaging spinal cord lesion location type

Specifies the location of lesions with respect to cord cross-sectional area involving spinal gray matter

 Exploratory Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C15380 Imaging retinal nerve fiber layer thickness in temporal quadrant abnormal status

This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the temporal quadrant of the eye is thin compared to the rest of the population

 Exploratory Imaging OCT Analysis - RNFL Thickness Analysis False Multiple Sclerosis Multiple Sclerosis
C15360 Imaging retinal nerve fiber layer thickness in superior quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the superior quadrant

 Exploratory Imaging OCT Analysis - Spectralis Report Analysis False Multiple Sclerosis Multiple Sclerosis
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Exploratory Grip Strength Fatigue False Multiple Sclerosis Multiple Sclerosis
C15385 Imaging retinal nerve fiber layer average overall thickness measurement

Average overall retinal nerve fiber layer (RNFL) thickness (value is in the center of the circle on the report, marked "G")

 Exploratory Imaging OCT Analysis - Spectralis Report Analysis False Multiple Sclerosis Multiple Sclerosis
C15431 Imaging white matter volume measurement

Volume of white matter in the brain

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C10858 Grip strength target value

Value of the target grip strength for the grip strength fatigue trial being recorded

 Exploratory Grip Strength Fatigue False Multiple Sclerosis Multiple Sclerosis
C15348 Optical coherence tomography Pelli-Robson contrast sensitivity test log score value

The log score of the Pelli-Robson Contrast Sensitivity Test

 Exploratory Imaging OCT Analysis - Contrast and Visual Acuity False Multiple Sclerosis Multiple Sclerosis
C15457 Imaging spinal cord lesion count

Total number of lesions located at any level of the spinal cord

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C19247 Subject ID

Subject identification ID

 Exploratory Fatigue/Activity Record and Diary False Multiple Sclerosis Multiple Sclerosis
C15320 Optical coherence tomography (OCT) retinal thickness laterality type

The side of the eyes examined during retinal thickness analysis by optical coherence tomography (OCT)

 Exploratory Imaging OCT Analysis - Stratus Retinal Thickness Report False Multiple Sclerosis Multiple Sclerosis
C14705 Berg Balance Scale (BBS) - unsupport stand front foot scale

The scale for assessment of standing unsupported one foot in front based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 Supplemental Berg Balance Scale (BBS) False Multiple Sclerosis Multiple Sclerosis
Displaying 126 - 150 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.