CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 451 - 475 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10980 Childbearing potential indicator

Indicator of whether the participant is of childbearing potential

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16159 Family history relative age at onset value

Age the participant's relative experienced the onset of the disease or disorder

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C15375 Imaging Gadolinium-enhancing lesion count

Total number of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C11929 Modified Fatigue Impact Scale (MFIS) - rest more often longer score

Scale for having needed to rest more often or for longer periods as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C16169 Pregnancy outcome type

Type of outcome of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C15474 Imaging diffusion result value

The numeric value for diffusion tensor imaging (DTI) result

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

 Supplemental Genetics False Multiple Sclerosis Multiple Sclerosis
C17456 MS uncle diagnosis total count

The total number of uncles that were diagnosed with Multiple Sclerosis

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C15405 Imaging brain volume fraction value

Ratio of whole brain parenchymal volume to total intracranial volume or other head-size normalization volume

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C17827 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble concentrating scale

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C16177 Post-menopausal indicator

Indicates whether participant is post-menopausal

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C58715 Relative biological sample registry placement location

The location where the relative's DNA sample resides, if known. (Indicate "N/A" if location is not known)

 Supplemental Genetics False Multiple Sclerosis Multiple Sclerosis
C00702 Alcohol use started age value

Age in years when participant/subject started ingesting alcoholic beverages, including social drinking

 Supplemental Behavioral History False Multiple Sclerosis Multiple Sclerosis
C15417 Imaging change in gray matter volume value

Absolute change in gray matter volume as compared to a reference scan acquired at an earlier timepoint

 Exploratory Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C15431 Imaging white matter volume measurement

Volume of white matter in the brain

 Exploratory Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C19008 Imaging spinal cord volume/cross-sectional area technique other text

The free-text field related to 'Imaging spinal cord volume/cross-sectional area technique type' specifying other text. Method used to determine the cord cross-sectional area or volume as a measure of cord atrophy

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C11513 Bladder Control Scale (BLCS) - lost control bladder 4 week scale

The scale related to lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Multiple Sclerosis Multiple Sclerosis
C15498 Imaging spinal cord lesion technique type

Method used to determine the number of lesions located in the spinal cord

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C11521 Bowel Control Scale (BWCS) - bowel control problems altered activities 4 week scale

Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Multiple Sclerosis Multiple Sclerosis
C15380 Imaging retinal nerve fiber layer thickness in temporal quadrant abnormal status

This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the temporal quadrant of the eye is thin compared to the rest of the population

 Exploratory Imaging OCT Analysis - Spectralis Report Analysis False Multiple Sclerosis Multiple Sclerosis
C10856 Grip strength unit of measure

Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded

 Exploratory Grip Strength Fatigue False Multiple Sclerosis Multiple Sclerosis
C15342 Optical coherence tomography low contrast Sloan letter chart 1.25 binocular count

The number of letters read correctly at low contrast on a Sloan letter chart at 1.25% at 2 meters

 Exploratory Imaging OCT Analysis - Contrast and Visual Acuity False Multiple Sclerosis Multiple Sclerosis
C17402 Site name

The name of the site for the study

 Exploratory Fatigue/Activity Record and Diary False Multiple Sclerosis Multiple Sclerosis
C15359 Imaging average macular thickness abnormal status

The indicator is the average macular thickness is abnormally low

 Exploratory Imaging OCT Analysis -Cirrus Macular Thickness False Multiple Sclerosis Multiple Sclerosis
C15340 Optical coherence tomography retinal nerve fiber layer signal strength value

Signal strength of optical coherence tomography (OCT) scan when acquiring retinal nerve fiber layer (RNFL) thickness data of the right eye (1-10)

 Exploratory Imaging OCT Analysis - RNFL Thickness Analysis False Multiple Sclerosis Multiple Sclerosis
Displaying 451 - 475 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.