CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 476 - 500 of 612

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1292-C15350	C15350	Imaging new juxtacortical lesion count	Total number of new focal T2-hyperintense brain lesions that are in contact with the cortex (with no intervening white matter)	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16120	C16120	MS current disease course type	Current Multiple Sclerosis (MS) disease course the participant/subject is experiencing	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1305-C14704	C14704	Berg Balance Scale (BBS) - alternate foot step up scale	The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15383	C15383	Imaging Gadolinium-enhancing lesion change in volume measurement	Change in volume of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16128	C16128	CNS other demyelinating disorder type	Type of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14790	C14790	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - pain scale	The scale for pain based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15504	C15504	Imaging spinal cord volume/cross-sectional area technique type	Method used to determine the cord cross-sectional area or volume as a measure of cord atrophy	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16191	C16191	Chicken pox infection age value	The age value of participant/subject when they experienced a natural infection of chicken pox	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15405	C15405	Imaging brain volume fraction value	Ratio of whole brain parenchymal volume to total intracranial volume or other head-size normalization volume	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16138	C16138	Symptoms initial category indicator	The presence or absence of symptoms first experienced by the participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14798	C14798	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty matching clothes scale	The scale for difficulty finding matching clothing from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15650	C15650	Imaging basal ganglia lesion count	Total number of lesions located in the basal ganglia (excluding the thalamus)	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15418	C15418	Imaging gray matter volume fraction value	Volume of gray matter in the brain or ratio of gray matter volume to total intracranial volume or other head-size normalization volume	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C19050	C19050	Symptoms initial category other text	The free-text field related to 'Symptoms initial category type' specifying other text. The body system or other categories describing where initial symptoms were present	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14806	C14806	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty driving bad weather scale	The scale of difficulty in driving bad weather based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19001	C19001	Imaging T1 hypointense lesion technique other text	The free-text field related to 'Imaging T1 hypointense lesion technique type' specifying other text. Method used to determine the total number of T1 hypointense lesions	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16103	C16103	Fever due to intercurrent illness indicator	Indicates whether the participant/subject has fever due to intercurrent illness	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15432	C15432	Imaging change in white matter volume value	Absolute change in white matter volume as compared to a reference scan acquired at an earlier timepoint	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14814	C14814	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - other assist scale	The scale for other assistance based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1305-C14698	C14698	Berg Balance Scale (BBS) - unsupport stand closed eyes scale	The scale for assessment of standing unsupported with eyes closed based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15457	C15457	Imaging spinal cord lesion count	Total number of lesions located at any level of the spinal cord	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1296-C15320	C15320	Optical coherence tomography (OCT) retinal thickness laterality type	The side of the eyes examined during retinal thickness analysis by optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis - Stratus Retinal Thickness Report	False	Multiple Sclerosis	Multiple Sclerosis
F1297-C15347	C15347	Optical coherence tomography average retinal nerve fiber layer thickness measurement	Average overall retinal nerve fiber layer (RNFL) thickness	Exploratory	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16183	C16183	Formula fed duration value	The duration of time the participant/subject was formula fed	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15346	C15346	Imaging regional T2 lesion count performed indicator	Whether regional T2 lesion counts were performed	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 476 - 500 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.