CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 612

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1280-C16184	C16184	Formula fed to infant name	The name of the formula fed to participant/subject	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1297-C15374	C15374	Imaging retinal nerve fiber layer thickness in inferior quadrant measurement	The retinal nerve fiber layer (RNFL) thickness of the inferior quadrant	Exploratory	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15375	C15375	Imaging Gadolinium-enhancing lesion count	Total number of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1273-C19052	C19052	State or province of residence other text	The free-text field related to 'State or province of residence text' specifying other text. Abbreviation for the state or province where the participant/subject currently lives	Supplemental	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15341	C15341	Optical coherence tomography (OCT) oculus sinister (OS) macula volume measurement	Total macula volume of the left eye	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15405	C15405	Imaging brain volume fraction value	Ratio of whole brain parenchymal volume to total intracranial volume or other head-size normalization volume	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15349	C15349	Optical coherence tomography (OCT) Spectralis-Heidelberg performed indicator	The indicator for spectral-domain optical coherence tomography (OCT) (Spectralis-Heidelberg) being performed	Exploratory	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16151	C16151	Child adopted before age one indicator	Indicates whether participant/subject has any adopted children who were adopted before one year of age	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15377	C15377	Imaging retinal nerve fiber layer thickness in temporal quadrant measurement	The retinal nerve fiber layer (RNFL) thickness of the temporal quadrant	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15425	C15425	Imaging gray matter lesion volume measurement	Volume of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1294-C15334	C15334	Optical coherence tomography low contrast Sloan letter chart 2.5 binocular count	The number of letters read correctly at low contrast on a Sloan letter chart at 2.5% from 2 meters	Exploratory	Imaging OCT Analysis - Contrast and Visual Acuity	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15431	C15431	Imaging white matter volume measurement	Volume of white matter in the brain	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14813	C14813	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - increase dependence others scale	The scale for increased dependence on others from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19008	C19008	Imaging spinal cord volume/cross-sectional area technique other text	The free-text field related to 'Imaging spinal cord volume/cross-sectional area technique type' specifying other text. Method used to determine the cord cross-sectional area or volume as a measure of cord atrophy	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16105	C16105	MS relapse onset within the last 24 hours indicator	Indicates whether onset of relapse was within the last 24 hours	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15445	C15445	Imaging cortical thickness measurement	Thickness of cerebral cortex measurement	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14821	C14821	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty recognize others scale	The scale for difficulty recognizing others from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15345	C15345	Imaging new periventricular lesion count	Total number of new focal T2-hyperintense brain lesions that are in contact with the ventricular system	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15381	C15381	Imaging Gadolinium-enhancing lesion total volume measurement	Total volume of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16122	C16122	Neuromyelitis Optica (NMO) spectrum disorder sub-disease type	Details of the Neuromyelitis Optica (NMO) spectrum disorder selected experienced by the participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14789	C14789	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - worry scale	The scale for worrying based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15498	C15498	Imaging spinal cord lesion technique type	Method used to determine the number of lesions located in the spinal cord	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15403	C15403	Imaging change in brain volume value	Absolute or percent change in whole brain parenchymal volume as compared to a reference scan acquired at an earlier timepoint	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16131	C16131	Clinical event occurrence range	Timeframe of when clinical event occurred	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14797	C14797	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty face reaction scale	The scale for difficulty face reaction from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 76 - 100 of 612

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.