CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1343-C14828	C14828	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - home alone scale	The scale for remaining home based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15378	C15378	Imaging new Gadolinium-enhancing lesion count	Number of new focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16121	C16121	Neuromyelitis Optica (NMO) spectrum disorder type	Type of Neuromyelitis Optica (NMO) spectrum disorder experienced by participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14788	C14788	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - overall eye scale	The scale for overall assessment of eye from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15495	C15495	Imaging other regional volumetric gap value	Gap on the other regional volumetric image optical slice	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15398	C15398	Imaging T1 hypointense lesion change in volume measurement	Change in volume of all focal T1-hypointense brain lesions (on this scan)	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16129	C16129	MS diagnostic criterion type	Diagnostic criteria the participant/subject diagnosed with Multiple Sclerosis (MS) fulfills	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14796	C14796	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty side object scale	The scale for difficulty side object from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15518	C15518	Imaging tissue integrity other regional measurements indicator	Whether measurements of the tissue integrity of other brain regions were taken	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16192	C16192	Vaccination within one month of demyelinating attack indicator	Whether or not the participant/subject received a vaccination within one month of his/her first demyelinating attack	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15415	C15415	Imaging gray matter volume measurement	Volume of the gray matter	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16139	C16139	Localization region anatomic site	Regions of possible onset of clinical event experience by participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14804	C14804	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty driving scale	The scale for difficulty driving based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C18999	C18999	Imaging T2W image technique other text	The free-text field related to 'Imaging T2W image technique type' specifying other text. Method used to determine the total volume of white matter hyperintensities on T2-weighted image	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C17453	C17453	MS relative description text	The free-text field for describing the relationship of relative with Multiple Sclerosis	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1305-C14696	C14696	Berg Balance Scale (BBS) - stand sit scale	The scale for assessment of standing to sitting based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15449	C15449	Imaging hippocampus volume measurement	Hippocampus volume measurement	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16174	C16174	Menopause indicator	Indicates whether participant is currently menopausal	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1295-C15352	C15352	Imaging average macular cube thickness measurement	Average macular thickness of the cube	Exploratory	Imaging OCT Analysis -Cirrus Macular Thickness	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C18998	C18998	Imaging clinical visit other text	The free-text field related to 'Imaging clinical visit type' specifying other text. The type of clinical visit coinciding with scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C19051	C19051	Parents biologically related other text	The free-text field related to 'Parents biologically related type' specifying other text. Type of relation of the biologically related parents	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15470	C15470	Imaging magnetization transfer ratio (MTR) result value	The magnetization transfer ratio (MTR) result	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1297-C15332	C15332	Optical coherence tomography retinal nerve fiber layer thickness laterality type	The side of the eyes examined during retinal nerve fiber layer (RNFL) thickness analysis by optical coherence tomography (OCT)	Supplemental	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15329	C15329	Imaging T2 lesion total count performed indicator	Whether total counts of the number of focal T2-hyperintense brain lesions was performed	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15457	C15457	Imaging spinal cord lesion count	Total number of lesions located at any level of the spinal cord	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.