CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C16126 Acute disseminated encephalomyelitis (ADEM) characteristics type

The signs and characteristics of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject

 Supplemental Diagnosis and Disease Characteristics False Multiple Sclerosis Multiple Sclerosis
C14788 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - overall eye scale

The scale for overall assessment of eye from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15495 Imaging other regional volumetric gap value

Gap on the other regional volumetric image optical slice

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C16188 Vaccine received indicator

Indicates whether participant/subject received the vaccine

 Supplemental Pediatric Developmental History False Multiple Sclerosis Multiple Sclerosis
C15398 Imaging T1 hypointense lesion change in volume measurement

Change in volume of all focal T1-hypointense brain lesions (on this scan)

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C16135 MS full recovery of relapse within year indicator

Indicates whether the participant/subject with Multiple Sclerosis was fully recovered from this relapse/exacerbation within a year

 Supplemental Diagnosis and Disease Characteristics False Multiple Sclerosis Multiple Sclerosis
C14796 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty side object scale

The scale for difficulty side object from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15518 Imaging tissue integrity other regional measurements indicator

Whether measurements of the tissue integrity of other brain regions were taken

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C17445 Clinical event or milestone 3 year sentence indicator

Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking in complete sentences by 3 years which is pertinent to the disease or disorder

 Supplemental Pediatric Developmental History False Multiple Sclerosis Multiple Sclerosis
C15415 Imaging gray matter volume measurement

Volume of the gray matter

 Exploratory Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C19048 Acute disseminated encephalomyelitis (ADEM) clinical course other text

The free-text field related to 'Acute disseminated encephalomyelitis (ADEM) clinical course type' specifying other text. The diagnosed type of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject

 Supplemental Diagnosis and Disease Characteristics False Multiple Sclerosis Multiple Sclerosis
C14804 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty driving scale

The scale for difficulty driving based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C18999 Imaging T2W image technique other text

The free-text field related to 'Imaging T2W image technique type' specifying other text. Method used to determine the total volume of white matter hyperintensities on T2-weighted image

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C16100 Symptoms new or worsening neurologic indicator

Indicates whether the participant/subject has new neurologic symptoms or an acute worsening of preexisting neurologic symptoms

 Supplemental-Highly Recommended Relapse False Multiple Sclerosis Multiple Sclerosis
C15377 Imaging retinal nerve fiber layer thickness in temporal quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the temporal quadrant

 Exploratory Imaging OCT Analysis - Spectralis Report Analysis False Multiple Sclerosis Multiple Sclerosis
C15425 Imaging gray matter lesion volume measurement

Volume of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C15334 Optical coherence tomography low contrast Sloan letter chart 2.5 binocular count

The number of letters read correctly at low contrast on a Sloan letter chart at 2.5% from 2 meters

 Exploratory Imaging OCT Analysis - Contrast and Visual Acuity False Multiple Sclerosis Multiple Sclerosis
C17459 MS offspring diagnosis indicator

The indicator of whether children were diagnosed with Multiple Sclerosis

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C14696 Berg Balance Scale (BBS) - stand sit scale

The scale for assessment of standing to sitting based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 Supplemental Berg Balance Scale (BBS) False Multiple Sclerosis Multiple Sclerosis
C15449 Imaging hippocampus volume measurement

Hippocampus volume measurement

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C15352 Imaging average macular cube thickness measurement

Average macular thickness of the cube

 Exploratory Imaging OCT Analysis -Cirrus Macular Thickness False Multiple Sclerosis Multiple Sclerosis
C18998 Imaging clinical visit other text

The free-text field related to 'Imaging clinical visit type' specifying other text. The type of clinical visit coinciding with scan

 Supplemental Magnetic Resonance Imaging (MRI) False Multiple Sclerosis Multiple Sclerosis
C15470 Imaging magnetization transfer ratio (MTR) result value

The magnetization transfer ratio (MTR) result

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C15332 Optical coherence tomography retinal nerve fiber layer thickness laterality type

The side of the eyes examined during retinal nerve fiber layer (RNFL) thickness analysis by optical coherence tomography (OCT)

 Supplemental Imaging OCT Analysis - RNFL Thickness Analysis False Multiple Sclerosis Multiple Sclerosis
C16181 Breast fed duration value

The duration of time the participant/subject was breast fed

 Supplemental Pediatric Developmental History False Multiple Sclerosis Multiple Sclerosis
Displaying 276 - 300 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.