CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 526 - 550 of 612

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1294-C15319	C15319	Optical coherence tomography contrast and visual acuity testing laterality type	The eye examined during high/low contrast and visual acuity testing by optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis - Contrast and Visual Acuity	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15432	C15432	Imaging change in white matter volume value	Absolute change in white matter volume as compared to a reference scan acquired at an earlier timepoint	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F2846-C57036	C57036	Visual analog severity scale	Scale related to the severity of fatigue being experienced currently	Exploratory	Fatigue Visual Analog Scale	False	Multiple Sclerosis	Multiple Sclerosis
F1295-C15339	C15339	Optical coherence tomography (OCT) macular cube total volume measurement	Total volume of the macular cube by optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis -Cirrus Macular Thickness	False	Multiple Sclerosis	Multiple Sclerosis
F0942-C11514	C11514	Bladder Control Scale (BLCS) - almost lost control bladder 4 week scale	The scale related to almost lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)	Exploratory	Bladder Control Scale (BLCS)	False	Multiple Sclerosis	Multiple Sclerosis
F0943-C11522	C11522	Bowel Control Scale (BWCS) - bowel problems restrict lifestyle 4 week scale	Scale measuring how often bowel control problems restricted overall lifestyle in the past 4 week as part of the Bowel Control Scale (BWCS)	Exploratory	Bowel Control Scale (BWCS)	False	Multiple Sclerosis	Multiple Sclerosis
F2848-C57040	C57040	Fatigue diary activity type	Type of activity entered in the Fatigue Diary	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
F1297-C15324	C15324	Optical coherence tomography difference in average overall retinal nerve fiber layer thickness measurement	The difference in average overall retinal nerve fiber layer (RNFL) thickness (oculus dexter;OD-oculus sinister;OS)	Exploratory	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1297-C15373	C15373	Imaging retinal nerve fiber layer thickness in inferior quadrant abnormal status	This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the inferior quadrant of the eye is thin compared to the rest of the population	Exploratory	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15506	C15506	Imaging spinal cord volume/cross-sectional area slice thickness measurement	Thickness of the spinal cord volume/cross-sectional area optical slice	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1281-C18824	C18824	History data not obtained other text	The free-text field related to 'History data not obtained reason' specifying other text. Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)	Exploratory	History Data Source and Reliability	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15333	C15333	Optical coherence tomography (OCT) oculus dexter (OD) macula volume measurement	Total macula volume of the right eye	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15344	C15344	Optical coherence tomography (OCT) Cirrus-Zeiss performed indicator	The indicator for whether the spectral-domain optical coherence tomography (OCT) (Cirrus - Zeiss) was performed	Exploratory	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15419	C15419	Imaging change in gray matter volume fraction value	Percent change in gray matter volume fraction as compared to a reference scan acquired at an earlier timepoint	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15374	C15374	Imaging retinal nerve fiber layer thickness in inferior quadrant measurement	The retinal nerve fiber layer (RNFL) thickness of the inferior quadrant	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F2799-C10854	C10854	Grip device width setting value	Value of the width setting on the grip device used to test the participant/subject's grip strength	Exploratory	Grip Strength Fatigue	False	Multiple Sclerosis	Multiple Sclerosis
F1294-C15326	C15326	Optical coherence tomography high contrast visual acuity count	The number of letters read correctly at 3.2 meters as a measurement of high contrast tomography (OCT) visual acuity	Exploratory	Imaging OCT Analysis - Contrast and Visual Acuity	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15434	C15434	Imaging white matter volume fraction value	Ratio of white matter volume to total intracranial volume or other head-size normalization volume	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F2848-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C59005	C59005	Imaging spinal cord lesion slice thickness measurement	Value of the thickness of the slice measured in millimeters (mm)	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1295-C15343	C15343	Optical coherence tomography (OCT) total macular volume abnormal status	This variable indicates whether the macular volume is abnormally low based on optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis -Cirrus Macular Thickness	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15376	C15376	Imaging other unspecified lesion count	Total number of other lesions whose type is not specified	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F0942-C11515	C11515	Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale	The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS)	Exploratory	Bladder Control Scale (BLCS)	False	Multiple Sclerosis	Multiple Sclerosis
F0943-C11523	C11523	Bowel Control Scale (BWCS) - sum score value	Sum of the score for questions in the Bowel Control Scale (BWCS)	Exploratory	Bowel Control Scale (BWCS)	False	Multiple Sclerosis	Multiple Sclerosis
F2848-C57041	C57041	Fatigue diary fatigue level value	Value of the level of fatigue an individual has entered within the Fatigue Diary	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 526 - 550 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.