CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 476 - 500 of 612

Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1297-C15340	C15340	Optical coherence tomography retinal nerve fiber layer signal strength value	Signal strength of optical coherence tomography (OCT) scan when acquiring retinal nerve fiber layer (RNFL) thickness data of the right eye (1-10)	Exploratory	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F0943-C11521	C11521	Bowel Control Scale (BWCS) - bowel control problems altered activities 4 week scale	Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS)	Exploratory	Bowel Control Scale (BWCS)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15458	C15458	Imaging spinal cord lesion anatomic site	Specifies the location of lesions in the spinal cord with respect to the different levels of vertebrae (cervical-C, thoracic-T, lumbar-L)	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1297-C15377	C15377	Imaging retinal nerve fiber layer thickness in temporal quadrant measurement	The retinal nerve fiber layer (RNFL) thickness of the temporal quadrant	Exploratory	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15376	C15376	Imaging other unspecified lesion count	Total number of other lesions whose type is not specified	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1281-C08147	C08147	Data source	Source of the data provided on the case report form	Exploratory	History Data Source and Reliability	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15418	C15418	Imaging gray matter volume fraction value	Volume of gray matter in the brain or ratio of gray matter volume to total intracranial volume or other head-size normalization volume	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15432	C15432	Imaging change in white matter volume value	Absolute change in white matter volume as compared to a reference scan acquired at an earlier timepoint	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15504	C15504	Imaging spinal cord volume/cross-sectional area technique type	Method used to determine the cord cross-sectional area or volume as a measure of cord atrophy	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15360	C15360	Imaging retinal nerve fiber layer thickness in superior quadrant measurement	The retinal nerve fiber layer (RNFL) thickness of the superior quadrant	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F2799-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Exploratory	Grip Strength Fatigue	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15385	C15385	Imaging retinal nerve fiber layer average overall thickness measurement	Average overall retinal nerve fiber layer (RNFL) thickness (value is in the center of the circle on the report, marked "G")	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15431	C15431	Imaging white matter volume measurement	Volume of white matter in the brain	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F2799-C10858	C10858	Grip strength target value	Value of the target grip strength for the grip strength fatigue trial being recorded	Exploratory	Grip Strength Fatigue	False	Multiple Sclerosis	Multiple Sclerosis
F1294-C15348	C15348	Optical coherence tomography Pelli-Robson contrast sensitivity test log score value	The log score of the Pelli-Robson Contrast Sensitivity Test	Exploratory	Imaging OCT Analysis - Contrast and Visual Acuity	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15457	C15457	Imaging spinal cord lesion count	Total number of lesions located at any level of the spinal cord	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F2848-C19247	C19247	Subject ID	Subject identification ID	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
F1296-C15320	C15320	Optical coherence tomography (OCT) retinal thickness laterality type	The side of the eyes examined during retinal thickness analysis by optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis - Stratus Retinal Thickness Report	False	Multiple Sclerosis	Multiple Sclerosis
F0942-C11514	C11514	Bladder Control Scale (BLCS) - almost lost control bladder 4 week scale	The scale related to almost lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)	Exploratory	Bladder Control Scale (BLCS)	False	Multiple Sclerosis	Multiple Sclerosis
F1297-C15347	C15347	Optical coherence tomography average retinal nerve fiber layer thickness measurement	Average overall retinal nerve fiber layer (RNFL) thickness	Exploratory	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F0943-C11522	C11522	Bowel Control Scale (BWCS) - bowel problems restrict lifestyle 4 week scale	Scale measuring how often bowel control problems restricted overall lifestyle in the past 4 week as part of the Bowel Control Scale (BWCS)	Exploratory	Bowel Control Scale (BWCS)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15460	C15460	Imaging spinal cord lesion location type	Specifies the location of lesions with respect to cord cross-sectional area involving spinal gray matter	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1297-C15380	C15380	Imaging retinal nerve fiber layer thickness in temporal quadrant abnormal status	This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the temporal quadrant of the eye is thin compared to the rest of the population	Exploratory	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1281-C11133	C11133	History data not obtained reason	Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)	Exploratory	History Data Source and Reliability	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15419	C15419	Imaging change in gray matter volume fraction value	Percent change in gray matter volume fraction as compared to a reference scan acquired at an earlier timepoint	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 476 - 500 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.