CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01028 Physical exam condition SNOMED CT code

Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)

Supplemental Physical Exam Multiple Sclerosis Multiple Sclerosis
C14817 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - current eyesight scale

The scale for current eyesight based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C02494 Imaging study date and time

Date (and time, if applicable and known) the radiologic study was obtained

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's/subject's medical history

Supplemental Medical History Multiple Sclerosis Multiple Sclerosis
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C15453 Imaging thalamus volume measurement

Thalamus volume measurement

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C01535 Respiratory rate

Rate of the participant/subject's breathing (inhalation and exhalation)

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C14825 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - assist others scale

The scale for needing help from others based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15366 Imaging new basal ganglia lesion count

Total number of new lesions located in the basal ganglia (excluding the thalamus)

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C08080 Twin sibling indicator

Indicator of whether the participant/subject has a twin brother or sister

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C16123 Acute myelitis segment anatomic site

The anatomic site(s) of segments in the vertebral column involved in acute myelitis

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C17394 Berg Balance Scale (BBS) - stand one leg scale

The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C15478 Imaging gray matter lesion technique type

Method used to determine the number of lesions

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C11992 Timed 25-Foot Walk (T25FW) - unilateral assistance device type

Range, in sides of the body, for which the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Multiple Sclerosis Multiple Sclerosis
C15393 Imaging T1 hypointense lesion count

Hypointense lesion number on T1 without antecedent T1-hypointensity on adequate prior MRI scan

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16132 MS first onset type

Disposition of first onset of event of multiple sclerosis (MS)

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14793 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty nearsightedness crowd scale

The scale for difficulty nearsightedness for crowded shelf, from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15515 Imaging tissue integrity whole brain measurement indicator

Whether measurements of the tissue integrity of the whole brain were taken

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C12001 Timed 25-Foot Walk (T25FW) - more than two attempts indicator

Indicator of whether more than two attempts were required to obtain two successful trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Multiple Sclerosis Multiple Sclerosis
C17442 Clinical event or milestone day care indicator

Whether the participant/subject achieved or experienced the specific clinical event or milestone of attending a day care group (with > 5 other children) which is pertinent to the disease or disorder

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C07093 Center for Epidemiologic Studies-Depression Scale (CES-D) - blues family friend indicator

Indicates how often the subject felt like not able to shake off blues even with help from family and friends in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Multiple Sclerosis Multiple Sclerosis
C18027 Comment text

Provide any additional information that pertains to the question

Supplemental Stroop Test Multiple Sclerosis Multiple Sclerosis
C15409 Imaging change in ventricular volume value

Absolute change in ventricular volume as compared to a reference scan acquired at an earlier timepoint

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16141 Observation method of localization region type

Observation method used in listed regions

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14801 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - driving indicator

The indicator for currently driving from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
Displaying 151 - 175 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.