CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 612
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15316 Optical coherence tomography (OCT) macular cube scan pattern type

The scan pattern used for the optical coherence tomography (OCT)

Exploratory Imaging OCT Analysis -Cirrus Macular Thickness Multiple Sclerosis Multiple Sclerosis
C15458 Imaging spinal cord lesion anatomic site

Specifies the location of lesions in the spinal cord with respect to the different levels of vertebrae (cervical-C, thoracic-T, lumbar-L)

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C52339 Subject initial text

The free-text field related to the initials of the subject

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C15327 Optical coherence tomography (OCT) signal strength value

Signal strength of optical coherence tomography (OCT) machine when scanning macula of eye (1-10)

Exploratory Imaging OCT Analysis - Stratus Retinal Thickness Report Multiple Sclerosis Multiple Sclerosis
C02499 Imaging pulse sequence type

Type of imaging pulse sequence used

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C11134 History data reliability type

Overall assessment of the reliability of the medical/family history data obtained

Exploratory History Data Source and Reliability Multiple Sclerosis Multiple Sclerosis
C15436 Imaging change in white matter volume fraction value

Percent change in white matter volume fraction as compared to a reference scan acquired at an earlier timepoint

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C11517 Bladder Control Scale (BLCS) - scores sum value

Sum of scores from questions 1 through 4 (0-22) as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Multiple Sclerosis Multiple Sclerosis
C15360 Imaging retinal nerve fiber layer thickness in superior quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the superior quadrant

Exploratory Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
C15318 Imaging follow-up scan indicator

Indicates if scan is a follow-up

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C15365 Imaging retinal nerve fiber layer thickness in superior quadrant abnormal status

Whether the average retinal nerve fiber layer (RNFL) thickness of the superior quadrant of the eye is thin compared to the rest of the population

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C15415 Imaging gray matter volume measurement

Volume of the gray matter

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C16209 Imaging retinal nerve fiber layer thickness in nasal quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the nasal quadrant

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C15434 Imaging white matter volume fraction value

Ratio of white matter volume to total intracranial volume or other head-size normalization volume

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C10860 Grip strength fatigue percent target hold duration

Duration in seconds that the participant was able to hold the grip device at the indicated percentage of the target value in the grip strength fatigue trial being recorded

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C15323 Optical coherence tomography (OCT) macular cube laterality type

The side of the eyes examined during macular cube analysis by optical coherence tomography (OCT)

Exploratory Imaging OCT Analysis -Cirrus Macular Thickness Multiple Sclerosis Multiple Sclerosis
C15460 Imaging spinal cord lesion location type

Specifies the location of lesions with respect to cord cross-sectional area involving spinal gray matter

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C57037 Fatigue diary entry start date and time

Start date and time for the fatigue diary entry

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C15335 Optical coherence tomography (OCT) total macula volume measurement

Total macula volume by optical coherence tomography (OCT)

Exploratory Imaging OCT Analysis - Stratus Retinal Thickness Report Multiple Sclerosis Multiple Sclerosis
C18589 Imaging spinal cord area value

Area of the spinal cord

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

Exploratory History Data Source and Reliability Multiple Sclerosis Multiple Sclerosis
C15438 Imaging change in normal appearing white matter value

Change in tissue integrity in normal-appearing white matter as compared to a reference scan acquired at an earlier timepoint

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C11518 Bowel Control Scale (BWCS) - constipation 4 week scale

Scale assessing constipation in the past 4 weeks, as part of the Bowel Control Scale (BWCS)

Exploratory Bowel Control Scale (BWCS) Multiple Sclerosis Multiple Sclerosis
C15365 Imaging retinal nerve fiber layer thickness in superior quadrant abnormal status

Whether the average retinal nerve fiber layer (RNFL) thickness of the superior quadrant of the eye is thin compared to the rest of the population

Exploratory Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
Displaying 101 - 125 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.