CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 226 - 250 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17452 MS aunt uncle diagnosis indicator

The indicator of whether any aunts and/or uncles were diagnosed with Multiple Sclerosis

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C11909 Modified Fatigue Impact Scale (MFIS) - less alert score

Scale for being less alert as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
C01014 Physical exam abnormality significance type

An indication if the physical exam abnormality in a specific body system is clinically significant

Supplemental Physical Exam Multiple Sclerosis Multiple Sclerosis
C14815 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - embarrass scale

The scale for embarrassment based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C00315 Medical history global assessment indicator

Indicator of whether the participant has a history of any medical problems/conditions

Supplemental Medical History Multiple Sclerosis Multiple Sclerosis
C17447 Event description text

The free-text field to describe the event

Supplemental Relapse Multiple Sclerosis Multiple Sclerosis
C15449 Imaging hippocampus volume measurement

Hippocampus volume measurement

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C01522 Height measurement

Measurement of participant's height

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C14823 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty indoor activity scale

The scale for difficulty indoor activity from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15356 Imaging new posterior fossa lesion count

Total number of new focal T2-hyperintense brain lesions that are in contact with the posterior fossa (brainstem or cerebellum)

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C16121 Neuromyelitis Optica (NMO) spectrum disorder type

Type of Neuromyelitis Optica (NMO) spectrum disorder experienced by participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14705 Berg Balance Scale (BBS) - unsupport stand front foot scale

The scale for assessment of standing unsupported one foot in front based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C11990 Timed 25-Foot Walk (T25FW) - ankle foot orthosis status

Indicator whether the participant/subject wore an ankle-foot orthosis (AFO) during the assessment, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Multiple Sclerosis Multiple Sclerosis
C15386 Imaging Gadolinium-enhancing lesion technique reference name

Name of software package used, website, and/or a citation to a journal article referencing the particular technique used to find Gadolinium-enhancing lesions

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16143 Parents biologically related type

Type of relation of the biologically related parents

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C16129 MS diagnostic criterion type

Diagnostic criteria the participant/subject diagnosed with Multiple Sclerosis (MS) fulfills

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14791 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty reading close scale

The scale of for difficulty reading close based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C11999 Timed 25-Foot Walk (T25FW) - trial 2 circumstances affecting performance text

Record in text any circumstances that affected the patient's performance for a completed Trial 2, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Multiple Sclerosis Multiple Sclerosis
C16192 Vaccination within one month of demyelinating attack indicator

Whether or not the participant/subject received a vaccination within one month of his/her first demyelinating attack

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C07091 Center for Epidemiologic Studies-Depression Scale (CES-D) - bother indicator

Indicates how often the subject felt bothered by things that don't usually bother in in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Multiple Sclerosis Multiple Sclerosis
C15910 Assessment date and time

The date of participant's injury

Supplemental Stroop Test Multiple Sclerosis Multiple Sclerosis
C15406 Imaging change in brain volume fraction percentage value

Percent change in whole brain volume fraction as compared to a reference scan acquired at an earlier timepoint

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16139 Localization region anatomic site

Regions of possible onset of clinical event experience by participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14799 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty visit people scale

The scale for difficulty visiting others from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
Displaying 226 - 250 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.