CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1733
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C55841 Test of Memory and Learning, Second Edition (TOMAL-2) - Paired Recall (PR) scaled score

The subject's scaled score on the Paired Recall (PR) verbal subtest, as part of the Test of Memory and Learning, Second Edition(TOMAL-2)

 Supplemental Test of Memory and Learning Revised (TOMAL-2) True Multiple Sclerosis Multiple Sclerosis
C14841 Activities specific Balance Confidence Scale (ABC-Scale) - walk to car scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking outside of the house to a car parked in the driveway

 Supplemental Activities Specific Balance Confidence Scale (ABC-Scale) True Multiple Sclerosis Multiple Sclerosis
C20500 Brief Visuospatial Memory Test - Revised (BVMT-R) - Copy image status (or text)

Copy image created by the subject, as part of Brief Visuospatial Memory Test - Revised (BVMT-R)

 Supplemental Brief Visuospatial Memory Test Revised (BVMT-R) True Multiple Sclerosis Multiple Sclerosis
C20501 Grooved Pegboard Test (GPT) - Dominant hand time duration

Duration of time for hand to place pegs as part of Grooved Pegboard Test (GPT)

 Supplemental Grooved Pegboard Test True Multiple Sclerosis Multiple Sclerosis
C08519 36-item Short Form Health Survey (SF-36) - Work not carefully emotional problems indicator

Indicator for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Multiple Sclerosis Multiple Sclerosis
C14117 School repeat grade indicator

Whether the participant/subject ever repeated a grade in school

 Supplemental Pediatric Developmental History False Multiple Sclerosis Multiple Sclerosis
C11923 Modified Fatigue Impact Scale (MFIS) - trouble finish task require think score

Scale for having had trouble finishing tasks that require thinking as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C10576 Imaging in plane resolution axis 1 measurement

Axis 1 of in-plane spatial resolution used in imaging acquisition

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C54159 Woodcock Johnson III (WJ-III) - Story recall story 2 points count

Count of the number of correct test subject responses from story recall story 2 test as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Supplemental Woodcock-Johnson III Test of Cognitive Abilities True Multiple Sclerosis Multiple Sclerosis
C14755 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - nervousness scale

The scale related to proportion of nervousness based on Multiple Sclerosis Quality of Life Scale (MSQOL-54)

 Supplemental Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) True Multiple Sclerosis Multiple Sclerosis
C55943 California Verbal Learning Test - Second Edition (CVLT-II) - Recall consistency percentage raw score

Recall consistency percentage, as part of the California Verbal Learning Test (CVLT-II)

 Supplemental California Verbal Learning Test - Second Edition (CVLT-II) True Multiple Sclerosis Multiple Sclerosis
C15455 Imaging change in thalamus volume value

Change in thalamus volume

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C51706 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 5:6 score

The score the subject received on the sketch for the age norm of 5 years and 6 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

 Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) True Multiple Sclerosis Multiple Sclerosis
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

 Supplemental Vital Signs False Multiple Sclerosis Multiple Sclerosis
C14715 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - verbal communication frequency

The frequency of verbal communication based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified

 Supplemental MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) True Multiple Sclerosis Multiple Sclerosis
C08081 Twin sibling type

Type of twin the participant/subject has

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C52996 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score match sample standard deviation reaction time score

Score related to the standard deviation reaction time score of the matching to sample composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Multiple Sclerosis Multiple Sclerosis
C16124 First optic neuritis and first myelitis onset elapsed time value

Time between the onset of the first optic neuritis and first myelitis

 Supplemental Diagnosis and Disease Characteristics False Multiple Sclerosis Multiple Sclerosis
C52729 Woodcock Johnson III (WJ-III) - Understanding directions picture 1 point value

Value of the points scored in understanding directions picture 1 as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Supplemental Woodcock-Johnson III Test of Cognitive Abilities True Multiple Sclerosis Multiple Sclerosis
C51121 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Story C scoring criteria item gist score

Gist score for the selected Story C scoring criteria item, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Multiple Sclerosis Multiple Sclerosis
C08526 36-item Short Form Health Survey (SF-36) - Times calm peaceful score

Score of times feeling calm and peaceful during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Multiple Sclerosis Multiple Sclerosis
C52905 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score simple reaction time standard deviation reaction time score

Score related to the standard deviation reaction time score of the simple reaction time composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Multiple Sclerosis Multiple Sclerosis
C50956 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Story C ice cream quantity recognition score

Score for the participant's recognition of the quantity of ice cream the boy picked up in Story C - Job Story, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Multiple Sclerosis Multiple Sclerosis
C19258 Occupation primary status

The status indicating the participant's/subject's current primary occupational status

 Supplemental Woodcock-Johnson III Test of Cognitive Abilities True Multiple Sclerosis Multiple Sclerosis
C11930 Modified Fatigue Impact Scale (MFIS) - physical sub score

Sum of MFIS Physical items (range: 0-36)

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
Displaying 201 - 225 of 1733

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.