CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1282-C05404	C05404	Symptom onset date and time	Date (and time, if applicable and known) reported for onset of participant's/subject's symptoms	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07103	C07103	Center for Epidemiologic Studies-Depression Scale (CES-D) - talk less indicator	Indicates how often the subject talked less than usual in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C53905	C53905	Stroop Color and Word Test (SCW) - Color word age educate predict score	Score (Age/Ed Predict) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F1285-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14811	C14811	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - frustrated scale	The scale for frustration based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1275-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Medical History	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16109	C16109	System deficit type indicator	Indicates whether the symptom(s)/deficit was present in the system	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07111	C07111	Center for Epidemiologic Studies Depression Scale (CES-D) - total score	CES-D Total Score - summation of the scores for the 20 items (0-60)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11913	C11913	Modified Fatigue Impact Scale (MFIS) - forgetful score	Scale for having been forgetful as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15442	C15442	Imaging central cerebral volume measurement	Central cerebral volume measurement	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14819	C14819	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty bill accuracy scale	The scale for difficulty determining bill accuracy, from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15455	C15455	Imaging change in thalamus volume value	Change in thalamus volume	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00711	C00711	Tobacco prior use indicator	Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15372	C15372	Imaging thalamus lesion count	Total number of lesion(s) located in the thalamus	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11928	C11928	Modified Fatigue Impact Scale (MFIS) - limit physical activity score	Scale for having limited physical activities as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15472	C15472	Imaging diffusion measurement type	Type of diffusion tensor imaging (DTI) measurement	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C16162	C16162	Tobacco days smoked in past 30 days count	Number of days during PAST 30 DAYS that participant/subject smoked a cigarette	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C18767	C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16147	C16147	Family history relative death cause text	Cause of death of the participant/subject's relative, if applicable	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15397	C15397	Imaging Gadolinium-enhancing lesion technique type	Method used to determine the lesions for gadolinium (Gd)-enhancing lesions on T1+Gd image	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C17826	C17826	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - limited ability away home scale	Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C10981	C10981	Birth control method type	The participant's method of birth control	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1288-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16206	C16206	Family history gender type	Reported gender of the relative. Gender is the socially constructed identity of sex	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.