CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 612

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1292-C15345	C15345	Imaging new periventricular lesion count	Total number of new focal T2-hyperintense brain lesions that are in contact with the ventricular system	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15338	C15338	Imaging T2 lesion total count	Total number of focal T2-hyperintense brain lesions	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11922	C11922	Modified Fatigue Impact Scale (MFIS) - physical uncomfort score	Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1278-C14708	C14708	Godin Leisure-Time Exercise Questionnaire - strenuous exercise per week frequency	Numeric value counting the average number of times per week that a participant/subject reports doing strenuous exercise (e.g., running, jogging, hockey, football, soccer, squash, basketball, cross country skiing, judo, roller skating, vigorous swimming, vigorous long distance bicycling)	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16150	C16150	Adopted age value	Age at time of adoption if participant/subject was adopted	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11930	C11930	Modified Fatigue Impact Scale (MFIS) - physical sub score	Sum of MFIS Physical items (range: 0-36)	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15645	C15645	Imaging new thalamus lesion count	Total number of new lesions located in the thalami	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1288-C08001	C08001	Family history relative type biological sample in repository indicator	Indicator of whether the participant's family member has donated biological sample(s) to a repository	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16164	C16164	Hormonal therapy start date/time	The date and time (if applicable and known) the participant started hormonal therapy	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15407	C15407	Imaging ventricular volume measurement	Volume measurement of the ventricles	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C17452	C17452	MS aunt uncle diagnosis indicator	The indicator of whether any aunts and/or uncles were diagnosed with Multiple Sclerosis	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C17828	C17828	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale	Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16173	C16173	Pregnancy estimate delivery date and time	The date and time (if applicable) the participant is estimated to deliver the pregnancy	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15430	C15430	Imaging volume technique reference text	Name of software package used, website, and/or a citation to a journal article referencing the particular technique used to find brain volume	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C15368	C15368	Imaging estimated glomerular filtration rate (eGFR) performed date and time	Date and time (if applicable) estimated glomerular filtration rate (eGFR) performed	Supplemental	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16193	C16193	Pregnancy outcome date/time	The date and time (if applicable and known) of the outcome (i.e., delivery of live birth, miscarriage, etc.) of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1305-C14697	C14697	Berg Balance Scale (BBS) - transfer scale	The scale for assessment of transfers based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15453	C15453	Imaging thalamus volume measurement	Thalamus volume measurement	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00706	C00706	Alcohol prior use indicator	Indicator of the participant's/subject's alcohol consumption prior to the past 12 months	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C02400	C02400	Brain volumetric analysis measurement	Measured brain volume in cubic centimeters	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16183	C16183	Formula fed duration value	The duration of time the participant/subject was formula fed	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15472	C15472	Imaging diffusion measurement type	Type of diffusion tensor imaging (DTI) measurement	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00714	C00714	Behavioral history assessment date and time	Date (and time, if applicable and known) the participant/subject behavioral history was taken	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.