CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 612

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1279-C16177	C16177	Post-menopausal indicator	Indicates whether participant is post-menopausal	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C18716	C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00702	C00702	Alcohol use started age value	Age in years when participant/subject started ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1305-C14702	C14702	Berg Balance Scale (BBS) - turn head scale	The scale for assessment of turning to look behind over left and right shoulders while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15466	C15466	Imaging tissue integrity region type	The areas of the brain where tissue integrity is measured	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16170	C16170	Menstrual period occurrence indicator	Indicates whether participant has ever had a menstrual period	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C10837	C10837	Imaging gap between slices measurement	Measurement of the gap between slices used in imaging acquisition	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11919	C11919	Modified Fatigue Impact Scale (MFIS) - difficult make decision score	Scale for having had difficulty making decisions as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00710	C00710	Tobacco current use indicator	Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15367	C15367	Imaging cortical lesion count	Total number of lesions located in the brain cortex or lesions in the subcortical WM also involving the cortex	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11927	C11927	Modified Fatigue Impact Scale (MFIS) - trouble concentrate score	Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15470	C15470	Imaging magnetization transfer ratio (MTR) result value	The magnetization transfer ratio (MTR) result	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C16160	C16160	Tobacco smoked 100 cigarettes indicator	Indicator for whether participant/subject has smoked at least 100 cigarettes in entire life	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16146	C16146	Family history relative age at death value	Age at death of the participant/subject's relative, if applicable	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15332	C15332	Optical coherence tomography retinal nerve fiber layer thickness laterality type	The side of the eyes examined during retinal nerve fiber layer (RNFL) thickness analysis by optical coherence tomography (OCT)	Supplemental	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15396	C15396	Imaging T1 hypointense lesion total volume measurement	Total volume of all focal T1-hypointense brain lesions (on this scan)	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C17825	C17825	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less alert scale	Scale for being less alert as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C10980	C10980	Childbearing potential indicator	Indicator of whether the participant is of childbearing potential	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1288-C16198	C16198	Biological sample in repository consent form signed indicator	Indicates whether the participant provided signed informed consent for the biological sample collection and storage in a repository	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16159	C16159	Family history relative age at onset value	Age the participant's relative experienced the onset of the disease or disorder	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1273-C16204	C16204	State or province of residence text	Abbreviation for the state or province where the participant/subject currently lives	Supplemental	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C05404	C05404	Symptom onset date and time	Date (and time, if applicable and known) reported for onset of participant's/subject's symptoms	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07103	C07103	Center for Epidemiologic Studies-Depression Scale (CES-D) - talk less indicator	Indicates how often the subject talked less than usual in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C53905	C53905	Stroop Color and Word Test (SCW) - Color word age educate predict score	Score (Age/Ed Predict) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.