CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 576 - 600 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15458 Imaging spinal cord lesion anatomic site

Specifies the location of lesions in the spinal cord with respect to the different levels of vertebrae (cervical-C, thoracic-T, lumbar-L)

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15377 Imaging retinal nerve fiber layer thickness in temporal quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the temporal quadrant

Exploratory Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
C15376 Imaging other unspecified lesion count

Total number of other lesions whose type is not specified

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15354 Optical coherence tomography (OCT) assisted reproduction technology (ART) mean value

The number of B-scan images (frames) averaged assisted reproduction technology (ART)

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C15355 Optical coherence tomography (OCT) ganglion cell layer thickness performed indicator

The indicator for whether ganglion cell layer thickness (segmentation) optical coherence tomography (OCT) (Cirrus-Zeiss) was performed

Exploratory Imaging Optical Coherence Tomography (OCT) Information Multiple Sclerosis Multiple Sclerosis
C15380 Imaging retinal nerve fiber layer thickness in temporal quadrant abnormal status

This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the temporal quadrant of the eye is thin compared to the rest of the population

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C10856 Grip strength unit of measure

Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C15342 Optical coherence tomography low contrast Sloan letter chart 1.25 binocular count

The number of letters read correctly at low contrast on a Sloan letter chart at 1.25% at 2 meters

Exploratory Imaging OCT Analysis - Contrast and Visual Acuity Multiple Sclerosis Multiple Sclerosis
C17402 Site name

The name of the site for the study

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C15359 Imaging average macular thickness abnormal status

The indicator is the average macular thickness is abnormally low

Exploratory Imaging OCT Analysis -Cirrus Macular Thickness Multiple Sclerosis Multiple Sclerosis
C11523 Bowel Control Scale (BWCS) - sum score value

Sum of the score for questions in the Bowel Control Scale (BWCS)

Exploratory Bowel Control Scale (BWCS) Multiple Sclerosis Multiple Sclerosis
C15504 Imaging spinal cord volume/cross-sectional area technique type

Method used to determine the cord cross-sectional area or volume as a measure of cord atrophy

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C08147 Data source

Source of the data provided on the case report form

Exploratory History Data Source and Reliability Multiple Sclerosis Multiple Sclerosis
C15418 Imaging gray matter volume fraction value

Volume of gray matter in the brain or ratio of gray matter volume to total intracranial volume or other head-size normalization volume

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15432 Imaging change in white matter volume value

Absolute change in white matter volume as compared to a reference scan acquired at an earlier timepoint

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C11515 Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale

The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Multiple Sclerosis Multiple Sclerosis
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Multiple Sclerosis Multiple Sclerosis
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Multiple Sclerosis Multiple Sclerosis
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Multiple Sclerosis Multiple Sclerosis
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Multiple Sclerosis Multiple Sclerosis
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Multiple Sclerosis Multiple Sclerosis
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Multiple Sclerosis Multiple Sclerosis
C17457 MS family medical history indicator

The indicator for family having medical history of Multiple Sclerosis

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C05404 Symptom onset date and time

Date (and time, if applicable and known) reported for onset of participant's/subject's symptoms

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
Displaying 576 - 600 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.