CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 501 - 525 of 612

Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1279-C16174	C16174	Menopause indicator	Indicates whether participant is currently menopausal	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C19051	C19051	Parents biologically related other text	The free-text field related to 'Parents biologically related type' specifying other text. Type of relation of the biologically related parents	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15351	C15351	Imaging regional T2 lesion count	Number of regional T2 lesions	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1275-C59019	C59019	Birth weight measurement	Measurement in kilograms of the weight of a neonate at birth	Supplemental	Medical History	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C00018	C00018	Education service type	Type of educational services received	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15381	C15381	Imaging Gadolinium-enhancing lesion total volume measurement	Total volume of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C10814	C10814	Parents biologically related indicator	The indicator whether the subject's/participant's parents are biologically related	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C19004	C19004	Imaging magnetization transfer ratio (MTR) measurement other text	The free-text field related to 'Imaging magnetization transfer ratio (MTR) measurement type' specifying other text. Magnetization transfer ratio measure	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1288-C16195	C16195	Biological sample in repository specimen type	Type of biological sample or specimen collected and stored in a repository	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
F1027-C11997	C11997	Timed 25-Foot Walk (T25FW) - trial 1 not completed reason	Indicator of the reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16184	C16184	Formula fed to infant name	The name of the formula fed to participant/subject	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00718	C00718	Tobacco use duration	Duration in years participant/subject has used tobacco products (e.g. cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16131	C16131	Clinical event occurrence range	Timeframe of when clinical event occurred	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C53902	C53902	Stroop Color and Word Test (SCW) - Color residual score	Score (residual) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F1280-C17441	C17441	Clinical event or milestone cognitive learning disability indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of having a cognitive/learning disability which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15421	C15421	Imaging new gray matter lesion count	Number of new brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14808	C14808	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - limit work scale	The scale for limit in how long can work or do other activities because of vision from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19003	C19003	Imaging brain volume fraction technique other text	The free-text field related to 'Imaging brain volume fraction technique type' specifying other text. Image analysis method used to calculate whole brain volume fraction	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16140	C16140	Localization region indicator	The presence or absence of symptoms experienced by the participant/subject in specific localization regions	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11910	C11910	Modified Fatigue Impact Scale (MFIS) - difficulty pay attention long period score	Scale for having difficulty paying attention for long periods of time as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14816	C14816	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - overall health scale	The scale for overall health based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C59003	C59003	Progressive multiple sclerosis status	The status of the participant/subjects disease course of progressive Multiple Sclerosis (MS)	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16105	C16105	MS relapse onset within the last 24 hours indicator	Indicates whether onset of relapse was within the last 24 hours	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 501 - 525 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.