CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C07100 Center for Epidemiologic Studies-Depression Scale (CES-D) - fearful indicator

Indicates how often the subject felt fearful in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) False Multiple Sclerosis Multiple Sclerosis
C14791 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty reading close scale

The scale of for difficulty reading close based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C19025 Imaging tissue integrity measure technique other text

The free-text field related to 'Imaging tissue integrity measure technique type' specifying other text. Type of imaging sequence used

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

 Supplemental Social Status False Multiple Sclerosis Multiple Sclerosis
C15910 Assessment date and time

The date of participant's injury

 Supplemental Stroop Test True Multiple Sclerosis Multiple Sclerosis
C07108 Center for Epidemiologic Studies-Depression Scale (CES-D) - sadness indicator

Indicates how often the subject felt sad in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) False Multiple Sclerosis Multiple Sclerosis
C15447 Imaging change in cortical thickness value

Change in cortical thickness

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C14799 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty visit people scale

The scale for difficulty visiting others from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15350 Imaging new juxtacortical lesion count

Total number of new focal T2-hyperintense brain lesions that are in contact with the cortex (with no intervening white matter)

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's/subject's medical history

 Supplemental Medical History False Multiple Sclerosis Multiple Sclerosis
C53901 Stroop Color and Word Test (SCW) - Color age educate predict score

Score (Age/Ed. Predict) of the color test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Multiple Sclerosis Multiple Sclerosis
C14807 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - decrease function scale

The scale for accomplishing less because of your vision from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15383 Imaging Gadolinium-enhancing lesion change in volume measurement

Change in volume of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C11909 Modified Fatigue Impact Scale (MFIS) - less alert score

Scale for being less alert as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C11991 Timed 25-Foot Walk (T25FW) - assistive device status

Indicator whether the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)

 Supplemental Timed 25-Foot Walk (T25-FW) False Multiple Sclerosis Multiple Sclerosis
C14815 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - embarrass scale

The scale for embarrassment based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15650 Imaging basal ganglia lesion count

Total number of lesions located in the basal ganglia (excluding the thalamus)

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C17453 MS relative description text

The free-text field for describing the relationship of relative with Multiple Sclerosis

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C59003 Progressive multiple sclerosis status

The status of the participant/subjects disease course of progressive Multiple Sclerosis (MS)

 Supplemental Diagnosis and Disease Characteristics False Multiple Sclerosis Multiple Sclerosis
C15408 Imaging T1 hypointense lesion technique type

Method used to determine the total number of T1 hypointense lesions

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C15362 Imaging QA/QC performed indicator

Was image-based QA/QC performed?

 Supplemental Imaging Optical Coherence Tomography (OCT) Information False Multiple Sclerosis Multiple Sclerosis
C16105 MS relapse onset within the last 24 hours indicator

Indicates whether onset of relapse was within the last 24 hours

 Supplemental Relapse False Multiple Sclerosis Multiple Sclerosis
C02495 Imaging scanner strength value

Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

 Supplemental Magnetic Resonance Imaging (MRI) False Multiple Sclerosis Multiple Sclerosis
C16174 Menopause indicator

Indicates whether participant/subject is currently menopausal

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
Displaying 51 - 75 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.