CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 476 - 500 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14827 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - irritability scale

The scale for irritability based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15375 Imaging Gadolinium-enhancing lesion count

Total number of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C08085 Sibling alive indicator

Indicator of whether the participant's/subject's sibling is still living

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C16125 Acute disseminated encephalomyelitis (ADEM) clinical course type

The diagnosed type of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14787 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - general health scale

The scale of general health as requested on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C11995 Timed 25-Foot Walk (T25FW) - trial 1 duration

Duration , in seconds and to the nearest tenth of a second, of the participant/subject's walking 25 feet for the trial being recorded, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Multiple Sclerosis Multiple Sclerosis
C15396 Imaging T1 hypointense lesion total volume measurement

Total volume of all focal T1-hypointense brain lesions (on this scan)

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16134 Treatment for clinical event type

Type of treatment participant/subject received for clinical event

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14795 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty stair climbing scale

The scale for difficulty stair climbing from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15517 Imaging tissue integrity normal appearing gray matter measurement indicator

Whether measurements of the tissue integrity of normal appearing gray matter were taken

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C17863 Timed 25-Foot Walk (T25FW) - trial not complete reason text

Text description of the indicated reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Multiple Sclerosis Multiple Sclerosis
C17444 Clinical event or milestone 2 year word combination indicator

Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking in two word combinations by 2 years which is pertinent to the disease or disorder

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C07095 Center for Epidemiologic Studies-Depression Scale (CES-D) - trouble keeping mind indicator

Indicates how often the subject had trouble keeping mind on what the he/she was doing in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Multiple Sclerosis Multiple Sclerosis
C16206 Family history gender type

Reported gender of the relative. Gender is the socially constructed identity of sex

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C15423 Imaging gray matter lesion count

Total number of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C16170 Menstrual period occurrence indicator

Indicates whether participant has ever had a menstrual period

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C17458 MS first cousin diagnosis indicator

The indicator of whether any first cousins were diagnosed with Multiple Sclerosis

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C14695 Berg Balance Scale (BBS) - unsupport sit scale

The scale for assessment of sitting with back unsupported but feet supported on floor or on a stool based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C15446 Imaging ventricular volume technique type

Image analysis method used to calculate ventricular volume

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C16178 Post-menopausal cause type

Type of cause or reason for the post-menopausal period in the participant

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C18718 Imaging scanner strength value type other text

The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History Multiple Sclerosis Multiple Sclerosis
C14703 Berg Balance Scale (BBS) - turn around scale

The scale for assessment of turning 360 degrees based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C15469 Imaging magnetization transfer ratio (MTR) measurement type

Magnetization transfer ratio measure

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C16171 Menstrual period first occurrence age value

Youngest age the participant had a menstrual period, otherwise known as the age of menarche

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
Displaying 476 - 500 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.