CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 351 - 375 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14796 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty side object scale

The scale for difficulty side object from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C11995 Timed 25-Foot Walk (T25FW) - trial 1 duration

Duration , in seconds and to the nearest tenth of a second, of the participant/subject's walking 25 feet for the trial being recorded, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Multiple Sclerosis Multiple Sclerosis
C16172 Pregnant current indicator

Indicator of whether the participant is currently pregnant

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C15393 Imaging T1 hypointense lesion count

Hypointense lesion number on T1 without antecedent T1-hypointensity on adequate prior MRI scan

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C15515 Imaging tissue integrity whole brain measurement indicator

Whether measurements of the tissue integrity of the whole brain were taken

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C16124 First optic neuritis and first myelitis onset elapsed time value

Time between the onset of the first optic neuritis and first myelitis

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C16180 Hormone-related syndrome indicator

Indicator of whether the participant has known hormone-related/endocrine syndromes or disorders

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C00705 Alcohol current use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months

Supplemental Behavioral History Multiple Sclerosis Multiple Sclerosis
C15409 Imaging change in ventricular volume value

Absolute change in ventricular volume as compared to a reference scan acquired at an earlier timepoint

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14696 Berg Balance Scale (BBS) - stand sit scale

The scale for assessment of standing to sitting based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C16133 Treatment for clinical event indicator

Indicates whether the participant/subject received treatment for the clinical event

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C17443 Clinical event or milestone 1 year speech indicator

Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking his/her first words by 12 months which is pertinent to the disease or disorder

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C16182 Formula fed indicator

Indicates whether participant/subject was formula fed

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C00713 Drug or substance current illicit use indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Behavioral History Multiple Sclerosis Multiple Sclerosis
C15423 Imaging gray matter lesion count

Total number of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C19004 Imaging magnetization transfer ratio (MTR) measurement other text

The free-text field related to 'Imaging magnetization transfer ratio (MTR) measurement type' specifying other text. Magnetization transfer ratio measure

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15332 Optical coherence tomography retinal nerve fiber layer thickness laterality type

The side of the eyes examined during retinal nerve fiber layer (RNFL) thickness analysis by optical coherence tomography (OCT)

Supplemental Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
C11921 Modified Fatigue Impact Scale (MFIS) - muscle weak score

Scale for feeling weak in muscles as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
C18770 Tobacco product used other text

The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

Supplemental Behavioral History Multiple Sclerosis Multiple Sclerosis
C16149 Biological parent twin type

Type of twin the biological parent has

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C02494 Imaging study date and time

Date (and time, if applicable and known) the radiologic study was obtained

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Supplemental Physical Exam Multiple Sclerosis Multiple Sclerosis
C11929 Modified Fatigue Impact Scale (MFIS) - rest more often longer score

Scale for having needed to rest more often or for longer periods as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
Displaying 351 - 375 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.