CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C16109 System deficit type indicator

Indicates whether the symptom(s)/deficit was present in the system

Supplemental Relapse Multiple Sclerosis Multiple Sclerosis
C08080 Twin sibling indicator

Indicator of whether the participant/subject has a twin brother or sister

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C15442 Imaging central cerebral volume measurement

Central cerebral volume measurement

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14794 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty reading long distance scale

The scale of for difficulty reading street signs based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C11992 Timed 25-Foot Walk (T25FW) - unilateral assistance device type

Range, in sides of the body, for which the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Multiple Sclerosis Multiple Sclerosis
C53896 Stroop Color and Word Test (SCW) - Word raw score

Score (raw) of the word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Multiple Sclerosis Multiple Sclerosis
C14802 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - not driving indicator

The indicator for ever driven car based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C01541 Weight measurement

Measurement of participant's weight

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C12001 Timed 25-Foot Walk (T25FW) - more than two attempts indicator

Indicator of whether more than two attempts were required to obtain two successful trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Multiple Sclerosis Multiple Sclerosis
C15375 Imaging Gadolinium-enhancing lesion count

Total number of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16125 Acute disseminated encephalomyelitis (ADEM) clinical course type

The diagnosed type of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C07093 Center for Epidemiologic Studies-Depression Scale (CES-D) - blues family friend indicator

Indicates how often the subject felt like not able to shake off blues even with help from family and friends in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Multiple Sclerosis Multiple Sclerosis
C15372 Imaging thalamus lesion count

Total number of lesion(s) located in the thalamus

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C16162 Tobacco days smoked in past 30 days count

Number of days during PAST 30 DAYS that participant/subject smoked a cigarette

Supplemental Behavioral History Multiple Sclerosis Multiple Sclerosis
C18767 Temperature measurement other text

The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C16147 Family history relative death cause text

Cause of death of the participant/subject's relative, if applicable

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C14694 Berg Balance Scale (BBS) - unsupport stand scale

The scale for assessment of standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C15397 Imaging Gadolinium-enhancing lesion technique type

Method used to determine the lesions for gadolinium (Gd)-enhancing lesions on T1+Gd image

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C10981 Birth control method type

The participant's method of birth control

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Genetics Multiple Sclerosis Multiple Sclerosis
C16206 Family history gender type

Reported gender of the relative. Gender is the socially constructed identity of sex

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C14702 Berg Balance Scale (BBS) - turn head scale

The scale for assessment of turning to look behind over left and right shoulders while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C11919 Modified Fatigue Impact Scale (MFIS) - difficult make decision score

Scale for having had difficulty making decisions as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
C15423 Imaging gray matter lesion count

Total number of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
Displaying 251 - 275 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.