CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1284-C19050	C19050	Symptoms initial category other text	The free-text field related to 'Symptoms initial category type' specifying other text. The body system or other categories describing where initial symptoms were present	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07092	C07092	Center for Epidemiologic Studies-Depression Scale (CES-D) - poor appetite indicator	Indicates how often the subject didn't feel like eating in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16103	C16103	Fever due to intercurrent illness indicator	Indicates whether the participant/subject has fever due to intercurrent illness	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C53901	C53901	Stroop Color and Word Test (SCW) - Color age educate predict score	Score (Age/Ed. Predict) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F1343-C14807	C14807	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - decrease function scale	The scale for accomplishing less because of your vision from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19002	C19002	Imaging brain volume technique other text	The free-text field related to 'Imaging brain volume technique type' specifying other text. Image analysis method used to calculate whole brain volume	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07100	C07100	Center for Epidemiologic Studies-Depression Scale (CES-D) - fearful indicator	Indicates how often the subject felt fearful in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16117	C16117	Protocol defined qualifying relapse indicator	If applicable, is this a protocol defined qualifying relapse according to the definition set in the study protocol	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11909	C11909	Modified Fatigue Impact Scale (MFIS) - less alert score	Scale for being less alert as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14815	C14815	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - embarrass scale	The scale for embarrassment based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1274-C00207	C00207	Marital or partner status	Status of participant/subject's current domestic relationship, whether marital or partnered	Supplemental	Social Status	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01521	C01521	Heart rate	The participant/subject's pulse or number of contractions (heart beats) per minute	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16183	C16183	Formula fed duration value	The duration of time the participant/subject was formula fed	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00714	C00714	Behavioral history assessment date and time	Date (and time, if applicable and known) the participant/subject behavioral history was taken	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15351	C15351	Imaging regional T2 lesion count	Number of regional T2 lesions	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11923	C11923	Modified Fatigue Impact Scale (MFIS) - trouble finish task require think score	Scale for having had trouble finishing tasks that require thinking as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F1278-C14708	C14708	Godin Leisure-Time Exercise Questionnaire - strenuous exercise per week frequency	Numeric value counting the average number of times per week that a participant/subject reports doing strenuous exercise (e.g., running, jogging, hockey, football, soccer, squash, basketball, cross country skiing, judo, roller skating, vigorous swimming, vigorous long distance bicycling)	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16150	C16150	Adopted age value	Age at time of adoption if participant/subject was adopted	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15381	C15381	Imaging Gadolinium-enhancing lesion total volume measurement	Total volume of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11931	C11931	Modified Fatigue Impact Scale (MFIS) - cognitive score	Sum of MFIS Cognitive items (range: 0-40)	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C19004	C19004	Imaging magnetization transfer ratio (MTR) measurement other text	The free-text field related to 'Imaging magnetization transfer ratio (MTR) measurement type' specifying other text. Magnetization transfer ratio measure	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1288-C16195	C16195	Biological sample in repository specimen type	Type of biological sample or specimen collected and stored in a repository	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16164	C16164	Hormonal therapy start date	The date and time (if applicable and known) the participant/subject started hormonal therapy	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.