CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C57036 Visual analog severity scale

Scale related to the severity of fatigue being experienced currently

 Exploratory Fatigue Visual Analog Scale False Multiple Sclerosis Multiple Sclerosis
C15339 Optical coherence tomography (OCT) macular cube total volume measurement

Total volume of the macular cube by optical coherence tomography (OCT)

 Exploratory Imaging OCT Analysis -Cirrus Macular Thickness False Multiple Sclerosis Multiple Sclerosis
C57039 Fatigue diary day indicator

Indication of Day (also broken down further into hours) within the Fatigue Diary

 Exploratory Fatigue/Activity Record and Diary False Multiple Sclerosis Multiple Sclerosis
C15317 Optical coherence tomography retinal nerve fiber layer analysis performed type

The type of retinal nerve fiber layer (RNFL) analysis performed on the optical coherence tomography (OCT) scan

 Exploratory Imaging OCT Analysis - RNFL Thickness Analysis False Multiple Sclerosis Multiple Sclerosis
C15369 Imaging retinal nerve fiber layer thickness in nasal quadrant abnormal status

This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the nasal quadrant of the eye is thin compared to the rest of the population

 Exploratory Imaging OCT Analysis - RNFL Thickness Analysis False Multiple Sclerosis Multiple Sclerosis
C18708 Imaging pulse sequence type other text

The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C15427 Imaging change in gray matter lesion volume value

Change in volume of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter

 Exploratory Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C19006 Imaging brain measured structure other text

The free-text field related to 'Imaging brain measured structure type' specifying other text. The structure of the brain volume measurement

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C11513 Bladder Control Scale (BLCS) - lost control bladder 4 week scale

The scale related to lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Multiple Sclerosis Multiple Sclerosis
C15491 Imaging brain measured structure type

The structure of the brain volume measurement

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C11521 Bowel Control Scale (BWCS) - bowel control problems altered activities 4 week scale

Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Multiple Sclerosis Multiple Sclerosis
C15333 Optical coherence tomography (OCT) oculus dexter (OD) macula volume measurement

Total macula volume of the right eye

 Exploratory Imaging OCT Analysis - Spectralis Report Analysis False Multiple Sclerosis Multiple Sclerosis
C15344 Optical coherence tomography (OCT) Cirrus-Zeiss performed indicator

The indicator for whether the spectral-domain optical coherence tomography (OCT) (Cirrus - Zeiss) was performed

 Exploratory Imaging Optical Coherence Tomography (OCT) Information False Multiple Sclerosis Multiple Sclerosis
C15374 Imaging retinal nerve fiber layer thickness in inferior quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the inferior quadrant

 Exploratory Imaging OCT Analysis - Spectralis Report Analysis False Multiple Sclerosis Multiple Sclerosis
C10854 Grip device width setting value

Value of the width setting on the grip device used to test the participant/subject's grip strength

 Exploratory Grip Strength Fatigue False Multiple Sclerosis Multiple Sclerosis
C15326 Optical coherence tomography high contrast visual acuity count

The number of letters read correctly at 3.2 meters as a measurement of high contrast tomography (OCT) visual acuity

 Exploratory Imaging OCT Analysis - Contrast and Visual Acuity False Multiple Sclerosis Multiple Sclerosis
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

 Exploratory Fatigue/Activity Record and Diary False Multiple Sclerosis Multiple Sclerosis
C15343 Optical coherence tomography (OCT) total macular volume abnormal status

This variable indicates whether the macular volume is abnormally low based on optical coherence tomography (OCT)

 Exploratory Imaging OCT Analysis -Cirrus Macular Thickness False Multiple Sclerosis Multiple Sclerosis
C57040 Fatigue diary activity type

Type of activity entered in the Fatigue Diary

 Exploratory Fatigue/Activity Record and Diary False Multiple Sclerosis Multiple Sclerosis
C15324 Optical coherence tomography difference in average overall retinal nerve fiber layer thickness measurement

The difference in average overall retinal nerve fiber layer (RNFL) thickness (oculus dexter;OD-oculus sinister;OS)

 Exploratory Imaging OCT Analysis - RNFL Thickness Analysis False Multiple Sclerosis Multiple Sclerosis
C15373 Imaging retinal nerve fiber layer thickness in inferior quadrant abnormal status

This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the inferior quadrant of the eye is thin compared to the rest of the population

 Exploratory Imaging OCT Analysis - RNFL Thickness Analysis False Multiple Sclerosis Multiple Sclerosis
C11522 Bowel Control Scale (BWCS) - bowel problems restrict lifestyle 4 week scale

Scale measuring how often bowel control problems restricted overall lifestyle in the past 4 week as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Multiple Sclerosis Multiple Sclerosis
C15415 Imaging gray matter volume measurement

Volume of the gray matter

 Exploratory Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C19007 Imaging spinal cord lesion technique other text

The free-text field related to 'Imaging spinal cord lesion technique type' specifying other text. Method used to determine the number of lesions located in the spinal cord

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C11514 Bladder Control Scale (BLCS) - almost lost control bladder 4 week scale

The scale related to almost lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Multiple Sclerosis Multiple Sclerosis
Displaying 26 - 50 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.