CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15453 Imaging thalamus volume measurement

Thalamus volume measurement

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15359 Imaging average macular thickness abnormal status

The indicator is the average macular thickness is abnormally low

Exploratory Imaging OCT Analysis -Cirrus Macular Thickness Multiple Sclerosis Multiple Sclerosis
C02400 Brain volumetric analysis measurement

Measured brain volume in cubic centimeters

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C00705 Alcohol current use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months

Supplemental Behavioral History Multiple Sclerosis Multiple Sclerosis
C11928 Modified Fatigue Impact Scale (MFIS) - limit physical activity score

Scale for having limited physical activities as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
C14704 Berg Balance Scale (BBS) - alternate foot step up scale

The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C11523 Bowel Control Scale (BWCS) - sum score value

Sum of the score for questions in the Bowel Control Scale (BWCS)

Exploratory Bowel Control Scale (BWCS) Multiple Sclerosis Multiple Sclerosis
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Multiple Sclerosis Multiple Sclerosis
C15383 Imaging Gadolinium-enhancing lesion change in volume measurement

Change in volume of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14144 Family history assessment date

Date family history was collected from the participant/ subject, family member/friend, and/or the medical record

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C16128 CNS other demyelinating disorder type

Type of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14790 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - pain scale

The scale for pain based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15504 Imaging spinal cord volume/cross-sectional area technique type

Method used to determine the cord cross-sectional area or volume as a measure of cord atrophy

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C11998 Timed 25-Foot Walk (T25FW) - trial 2 duration

The time it takes the participant/subject to walk 25 feet, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Multiple Sclerosis Multiple Sclerosis
C16191 Chicken pox infection age value

The age value of participant/subject when they experienced a natural infection of chicken pox

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C15405 Imaging brain volume fraction value

Ratio of whole brain parenchymal volume to total intracranial volume or other head-size normalization volume

Supplemental-Highly Recommended Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16138 Symptoms initial category indicator

The presence or absence of symptoms first experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14798 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty matching clothes scale

The scale for difficulty finding matching clothing from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15650 Imaging basal ganglia lesion count

Total number of lesions located in the basal ganglia (excluding the thalamus)

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Multiple Sclerosis Multiple Sclerosis
C08147 Data source

Source of the data provided on the case report form

Exploratory History Data Source and Reliability Multiple Sclerosis Multiple Sclerosis
C07098 Center for Epidemiologic Studies-Depression Scale (CES-D) - hopeful future indicator

Indicates how often the subject felt hopefully about the future in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Multiple Sclerosis Multiple Sclerosis
C15418 Imaging gray matter volume fraction value

Volume of gray matter in the brain or ratio of gray matter volume to total intracranial volume or other head-size normalization volume

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C19050 Symptoms initial category other text

The free-text field related to 'Symptoms initial category type' specifying other text. The body system or other categories describing where initial symptoms were present

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14806 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty driving bad weather scale

The scale of difficulty in driving bad weather based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
Displaying 201 - 225 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.