CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 612

« first
‹ previous
…
4
5
6
7
8
9
10
11
12
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1280-C17445	C17445	Clinical event or milestone 3 year sentence indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking in complete sentences by 3 years which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15369	C15369	Imaging retinal nerve fiber layer thickness in nasal quadrant abnormal status	This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the nasal quadrant of the eye is thin compared to the rest of the population	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1273-C18806	C18806	Country of residence other text	The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Supplemental	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15648	C15648	Imaging oculus sinister (OS) refraction value	The refraction of the left eye (OS)	Exploratory	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07104	C07104	Center for Epidemiologic Studies-Depression Scale (CES-D) - loneliness indicator	Indicates how often the subject felt lonely in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15425	C15425	Imaging gray matter lesion volume measurement	Volume of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F2799-C10854	C10854	Grip device width setting value	Value of the width setting on the grip device used to test the participant/subject's grip strength	Exploratory	Grip Strength Fatigue	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14810	C14810	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - remain home scale	The scale for remaining home because of eyesight based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19005	C19005	Imaging gray matter lesion technique other text	The free-text field related to 'Imaging gray matter lesion technique type' specifying other text. Method used to determine the number of lesions	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11912	C11912	Modified Fatigue Impact Scale (MFIS) - clumsy uncoordinated score	Scale for having been clumsy and uncoordinated as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15440	C15440	Imaging timepoint for change in normal appearing white matter value	Timepoint used to calculate change in normal-appearing white matter	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14818	C14818	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - use difficulty reading scale	The scale for difficulty reading based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15321	C15321	Imaging T2W brain lesion volume measurement	Total volume of all focal T2-hyperintense brain lesions	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14826	C14826	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - limit activity scale	The scale for limit activities because of vision from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15371	C15371	Imaging new other unspecified lesion count	Total number of other new lesions whose type is not specified	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11920	C11920	Modified Fatigue Impact Scale (MFIS) - less motivate activity require think score	Scale for having been less motivated to do anything that requires thinking as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1309-C14707	C14707	Disease Steps Scale	The scale to describe disease steps	Supplemental	Disease Steps (DS)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15490	C15490	Imaging regional brain volume technique type	Image analysis method used to calculate other regional volume or regional volume fractions	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15395	C15395	Imaging new T1 hypointense lesion count	New hypointense lesion number on T1 without antecedent T1-hypointensity on adequate prior MRI scan	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11928	C11928	Modified Fatigue Impact Scale (MFIS) - limit physical activity score	Scale for having limited physical activities as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14794	C14794	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty reading long distance scale	The scale of for difficulty reading street signs based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15516	C15516	Imaging tissue integrity normal appearing white matter measurement indicator	Whether measurements of the tissue integrity of normal appearing white matter were taken	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15411	C15411	Imaging ventricular volume fraction value	Ratio of ventricular volume to total intracranial volume or other head-size normalization volume	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C17826	C17826	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - limited ability away home scale	Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 176 - 200 of 612

« first
‹ previous
…
4
5
6
7
8
9
10
11
12
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.