CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17394 Berg Balance Scale (BBS) - stand one leg scale

The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C15478 Imaging gray matter lesion technique type

Method used to determine the number of lesions

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C11992 Timed 25-Foot Walk (T25FW) - unilateral assistance device type

Range, in sides of the body, for which the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Multiple Sclerosis Multiple Sclerosis
C16187 Vaccine type

Vaccination received by pediatric patient

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C15364 Imaging juxtacortical lesion count

Total number of focal T2-hyperintense brain lesions that are in contact with the cortex (with no intervening white matter)

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C11926 Modified Fatigue Impact Scale (MFIS) - think slow down score

Scale for slowed down thinking as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
C15469 Imaging magnetization transfer ratio (MTR) measurement type

Magnetization transfer ratio measure

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant

Supplemental Behavioral History Multiple Sclerosis Multiple Sclerosis
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C16145 Family history relative birth date

The date of birth of a related family members to the participant/subject

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C15325 Imaging reference scan date

The date and time (if applicable) that a reference scan was performed

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C15393 Imaging T1 hypointense lesion count

Hypointense lesion number on T1 without antecedent T1-hypointensity on adequate prior MRI scan

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C17824 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less able complete tasks requiring physical effort scale

Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
C15322 Imaging clinical visit date and time

Date and time of clinical visit coinciding with scan

Supplemental Imaging Optical Coherence Tomography (OCT) Information Multiple Sclerosis Multiple Sclerosis
C14711 Godin Leisure-Time Exercise Questionnaire - exercise per week scale

The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly

Supplemental Godin Leisure-Time Exercise Questionnaire Multiple Sclerosis Multiple Sclerosis
C16153 Family history relative type with MS number

For the specified relative type, the total number of relatives diagnosed with multiple sclerosis (MS)

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C15369 Imaging retinal nerve fiber layer thickness in nasal quadrant abnormal status

This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the nasal quadrant of the eye is thin compared to the rest of the population

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C15418 Imaging gray matter volume fraction value

Volume of gray matter in the brain or ratio of gray matter volume to total intracranial volume or other head-size normalization volume

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C15648 Imaging oculus sinister (OS) refraction value

The refraction of the left eye (OS)

Exploratory Imaging Optical Coherence Tomography (OCT) Information Multiple Sclerosis Multiple Sclerosis
C15322 Imaging clinical visit date and time

Date and time of clinical visit coinciding with scan

Supplemental Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C17455 MS spouse diagnosis indicator

The indicator of whether a spouse was diagnosed with Multiple Sclerosis

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C14693 Berg Balance Scale (BBS) - sit stand scale

The scale for assessment of sitting to standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C15442 Imaging central cerebral volume measurement

Central cerebral volume measurement

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C17783 Grip strength fatigue percent target not attain indicator

Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
Displaying 176 - 200 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.