CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15360 Imaging retinal nerve fiber layer thickness in superior quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the superior quadrant

Exploratory Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
C16186 Education performance status

Participant/subject's cognitive status with regards to education

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C15357 Imaging periventricular lesion count

Total number of focal T2-hyperintense brain lesions that are in contact with the ventricular system

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C11925 Modified Fatigue Impact Scale (MFIS) - unable complete task physical effort score

Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
C15466 Imaging tissue integrity region type

The areas of the brain where tissue integrity is measured

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C00719 Tobacco product used type

Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

Supplemental Behavioral History Multiple Sclerosis Multiple Sclerosis
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C11517 Bladder Control Scale (BLCS) - scores sum value

Sum of scores from questions 1 through 4 (0-22) as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Multiple Sclerosis Multiple Sclerosis
C15318 Imaging follow-up scan indicator

Indicates if scan is a follow-up

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C15386 Imaging Gadolinium-enhancing lesion technique reference name

Name of software package used, website, and/or a citation to a journal article referencing the particular technique used to find Gadolinium-enhancing lesions

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C11933 Modified Fatigue Impact Scale (MFIS) - total score

Total MFIS score (range: 0-84)

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
C14710 Godin Leisure-Time Exercise Questionnaire - mild exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing mild exercise (e.g., yoga, archery, fishing from river bank, bowling, horseshoes, golf, snow-mobiling, easy walking)

Supplemental Godin Leisure-Time Exercise Questionnaire Multiple Sclerosis Multiple Sclerosis
C11991 Timed 25-Foot Walk (T25FW) - assistive device status

Indicator whether the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Multiple Sclerosis Multiple Sclerosis
C16152 Sibling adopted before age one indicator

Indicates whether participant/subject has any adopted siblings who were adopted before one year of age

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C15423 Imaging gray matter lesion count

Total number of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14809 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - function scale

The scale of for difficulty function based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C19004 Imaging magnetization transfer ratio (MTR) measurement other text

The free-text field related to 'Imaging magnetization transfer ratio (MTR) measurement type' specifying other text. Magnetization transfer ratio measure

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C16106 MS relapse onset within the last 7 days indicator

Indicates whether onset of relapse was within the last 7 days

Supplemental Relapse Multiple Sclerosis Multiple Sclerosis
C11911 Modified Fatigue Impact Scale (MFIS) - unable think clearly score

Scale of having been unable to think clearly as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
C15438 Imaging change in normal appearing white matter value

Change in tissue integrity in normal-appearing white matter as compared to a reference scan acquired at an earlier timepoint

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C01028 Physical exam condition SNOMED CT code

Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)

Supplemental Physical Exam Multiple Sclerosis Multiple Sclerosis
C14817 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - current eyesight scale

The scale for current eyesight based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C15453 Imaging thalamus volume measurement

Thalamus volume measurement

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14825 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - assist others scale

The scale for needing help from others based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
Displaying 101 - 125 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.