CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14826 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - limit activity scale

The scale for limit activities because of vision from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15371 Imaging new other unspecified lesion count

Total number of other new lesions whose type is not specified

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14707 Disease Steps Scale

The scale to describe disease steps

Supplemental Disease Steps (DS) Multiple Sclerosis Multiple Sclerosis
C15490 Imaging regional brain volume technique type

Image analysis method used to calculate other regional volume or regional volume fractions

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C11515 Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale

The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Multiple Sclerosis Multiple Sclerosis
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Multiple Sclerosis Multiple Sclerosis
C15395 Imaging new T1 hypointense lesion count

New hypointense lesion number on T1 without antecedent T1-hypointensity on adequate prior MRI scan

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14794 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty reading long distance scale

The scale of for difficulty reading street signs based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15516 Imaging tissue integrity normal appearing white matter measurement indicator

Whether measurements of the tissue integrity of normal appearing white matter were taken

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C11523 Bowel Control Scale (BWCS) - sum score value

Sum of the score for questions in the Bowel Control Scale (BWCS)

Exploratory Bowel Control Scale (BWCS) Multiple Sclerosis Multiple Sclerosis
C15411 Imaging ventricular volume fraction value

Ratio of ventricular volume to total intracranial volume or other head-size normalization volume

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14144 Family history assessment date

Date family history was collected from the participant/ subject, family member/friend, and/or the medical record

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C14802 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - not driving indicator

The indicator for ever driven car based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C11998 Timed 25-Foot Walk (T25FW) - trial 2 duration

The time it takes the participant/subject to walk 25 feet, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Multiple Sclerosis Multiple Sclerosis
C15373 Imaging retinal nerve fiber layer thickness in inferior quadrant abnormal status

This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the inferior quadrant of the eye is thin compared to the rest of the population

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C15420 Imaging brain volume technique type

Image analysis method used to calculate whole brain volume

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C10852 Grip strength test performed date and time

Date (and time, if applicable and known) that grip strength testing was done

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C15319 Optical coherence tomography contrast and visual acuity testing laterality type

The eye examined during high/low contrast and visual acuity testing by optical coherence tomography (OCT)

Exploratory Imaging OCT Analysis - Contrast and Visual Acuity Multiple Sclerosis Multiple Sclerosis
C16119 MS onset course type

Type of onset experienced by participant/subject diagnosed with MS

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C15330 Imaging clinical visit type

The type of clinical visit coinciding with scan

Supplemental-Highly Recommended Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C00700 Alcohol use stopped age value

Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History Multiple Sclerosis Multiple Sclerosis
C14694 Berg Balance Scale (BBS) - unsupport stand scale

The scale for assessment of standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C15445 Imaging cortical thickness measurement

Thickness of cerebral cortex measurement

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15339 Optical coherence tomography (OCT) macular cube total volume measurement

Total volume of the macular cube by optical coherence tomography (OCT)

Exploratory Imaging OCT Analysis -Cirrus Macular Thickness Multiple Sclerosis Multiple Sclerosis
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.