CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1273-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16120	C16120	MS current disease course type	Current Multiple Sclerosis (MS) disease course the participant/subject is experiencing	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07100	C07100	Center for Epidemiologic Studies-Depression Scale (CES-D) - fearful indicator	Indicates how often the subject felt fearful in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15457	C15457	Imaging spinal cord lesion count	Total number of lesions located at any level of the spinal cord	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11930	C11930	Modified Fatigue Impact Scale (MFIS) - physical sub score	Sum of MFIS Physical items (range: 0-36)	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14795	C14795	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty stair climbing scale	The scale for difficulty stair climbing from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15438	C15438	Imaging change in normal appearing white matter value	Change in tissue integrity in normal-appearing white matter as compared to a reference scan acquired at an earlier timepoint	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16168	C16168	Pregnancy self or spouse number	Number of each pregnancy of participant/subject or participant/subject's partner	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C17455	C17455	MS spouse diagnosis indicator	The indicator of whether a spouse was diagnosed with Multiple Sclerosis	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15474	C15474	Imaging diffusion result value	The numeric value for diffusion tensor imaging (DTI) result	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15346	C15346	Imaging regional T2 lesion count performed indicator	Whether regional T2 lesion counts were performed	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C17828	C17828	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale	Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14803	C14803	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - not driving reason	The reason giving up driving based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01553	C01553	Blood pressure measurement position type	Indicator of the participant/subject's position during the blood pressure measurement	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15453	C15453	Imaging thalamus volume measurement	Thalamus volume measurement	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16176	C16176	Hormone therapy indicator	Indicates whether participant/subject has taken hormonal therapy	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15366	C15366	Imaging new basal ganglia lesion count	Total number of new lesions located in the basal ganglia (excluding the thalamus)	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00701	C00701	Tobacco use stopped age value	Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15478	C15478	Imaging gray matter lesion technique type	Method used to determine the number of lesions	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15379	C15379	Imaging T2W image technique type	Method used to determine the total volume of white matter hyperintensities on T2-weighted image	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F2799-C10856	C10856	Grip strength unit of measure	Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded	Exploratory	Grip Strength Fatigue	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14811	C14811	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - frustrated scale	The scale for frustration based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C14117	C14117	School repeat grade indicator	Whether the participant/subject ever repeated a grade in school	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15393	C15393	Imaging T1 hypointense lesion count	Hypointense lesion number on T1 without antecedent T1-hypointensity on adequate prior MRI scan	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00709	C00709	Tobacco cigarettes smoked daily average number	Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.