CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1297-C15365	C15365	Imaging retinal nerve fiber layer thickness in superior quadrant abnormal status	Whether the average retinal nerve fiber layer (RNFL) thickness of the superior quadrant of the eye is thin compared to the rest of the population	Exploratory	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11926	C11926	Modified Fatigue Impact Scale (MFIS) - think slow down score	Scale for slowed down thinking as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15469	C15469	Imaging magnetization transfer ratio (MTR) measurement type	Magnetization transfer ratio measure	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16008	C16008	Birth control indicator	Indicates if participant uses birth control	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1027-C17863	C17863	Timed 25-Foot Walk (T25FW) - trial not complete reason text	Text description of the indicated reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Multiple Sclerosis	Multiple Sclerosis
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15449	C15449	Imaging hippocampus volume measurement	Hippocampus volume measurement	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C17450	C17450	MS first cousin diagnosis total count	The total number of first cousins that were diagnosed with Multiple Sclerosis	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07095	C07095	Center for Epidemiologic Studies-Depression Scale (CES-D) - trouble keeping mind indicator	Indicates how often the subject had trouble keeping mind on what the he/she was doing in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14794	C14794	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty reading long distance scale	The scale of for difficulty reading street signs based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15356	C15356	Imaging new posterior fossa lesion count	Total number of new focal T2-hyperintense brain lesions that are in contact with the posterior fossa (brainstem or cerebellum)	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16133	C16133	Treatment for clinical event indicator	Indicates whether the participant/subject received treatment for the clinical event	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C17443	C17443	Clinical event or milestone 1 year speech indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking his/her first words by 12 months which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1273-C16204	C16204	State or province of residence text	Abbreviation for the state or province where the participant/subject currently lives	Supplemental	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C17459	C17459	MS offspring diagnosis indicator	The indicator of whether children were diagnosed with Multiple Sclerosis	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07103	C07103	Center for Epidemiologic Studies-Depression Scale (CES-D) - talk less indicator	Indicates how often the subject talked less than usual in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14802	C14802	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - not driving indicator	The indicator for ever driven car based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15386	C15386	Imaging Gadolinium-enhancing lesion technique reference name	Name of software package used, website, and/or a citation to a journal article referencing the particular technique used to find Gadolinium-enhancing lesions	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15506	C15506	Imaging spinal cord volume/cross-sectional area slice thickness measurement	Thickness of the spinal cord volume/cross-sectional area optical slice	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C17457	C17457	MS family medical history indicator	The indicator for family having medical history of Multiple Sclerosis	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1281-C18824	C18824	History data not obtained other text	The free-text field related to 'History data not obtained reason' specifying other text. Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)	Exploratory	History Data Source and Reliability	False	Multiple Sclerosis	Multiple Sclerosis
F1275-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Medical History	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00704	C00704	Alcohol drinking day average drinks consumed range	The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07111	C07111	Center for Epidemiologic Studies Depression Scale (CES-D) - total score	CES-D Total Score - summation of the scores for the 20 items (0-60)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14810	C14810	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - remain home scale	The scale for remaining home because of eyesight based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.