CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 301 - 325 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11521 Bowel Control Scale (BWCS) - bowel control problems altered activities 4 week scale

Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS)

Exploratory Bowel Control Scale (BWCS) Multiple Sclerosis Multiple Sclerosis
C01550 Temperature measurement anatomic site

Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C14828 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - home alone scale

The scale for remaining home based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15378 Imaging new Gadolinium-enhancing lesion count

Number of new focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

Supplemental-Highly Recommended Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16126 Acute disseminated encephalomyelitis (ADEM) characteristics type

The signs and characteristics of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14788 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - overall eye scale

The scale for overall assessment of eye from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15495 Imaging other regional volumetric gap value

Gap on the other regional volumetric image optical slice

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15374 Imaging retinal nerve fiber layer thickness in inferior quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the inferior quadrant

Exploratory Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
C15375 Imaging Gadolinium-enhancing lesion count

Total number of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C11929 Modified Fatigue Impact Scale (MFIS) - rest more often longer score

Scale for having needed to rest more often or for longer periods as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
C15474 Imaging diffusion result value

The numeric value for diffusion tensor imaging (DTI) result

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16148 Biological parent twin indicator

Indicates whether the biological parent is a twin

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C15341 Optical coherence tomography (OCT) oculus sinister (OS) macula volume measurement

Total macula volume of the left eye

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C15405 Imaging brain volume fraction value

Ratio of whole brain parenchymal volume to total intracranial volume or other head-size normalization volume

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C17827 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble concentrating scale

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
C15349 Optical coherence tomography (OCT) Spectralis-Heidelberg performed indicator

The indicator for spectral-domain optical coherence tomography (OCT) (Spectralis-Heidelberg) being performed

Exploratory Imaging Optical Coherence Tomography (OCT) Information Multiple Sclerosis Multiple Sclerosis
C16008 Birth control indicator

Indicates if participant uses birth control

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C17450 MS first cousin diagnosis total count

The total number of first cousins that were diagnosed with Multiple Sclerosis

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C15377 Imaging retinal nerve fiber layer thickness in temporal quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the temporal quadrant

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C15425 Imaging gray matter lesion volume measurement

Volume of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C10855 Grip strength maximum measurement

Measurement of the maximum grip strength attained in the trial being recorded

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C15334 Optical coherence tomography low contrast Sloan letter chart 2.5 binocular count

The number of letters read correctly at low contrast on a Sloan letter chart at 2.5% from 2 meters

Exploratory Imaging OCT Analysis - Contrast and Visual Acuity Multiple Sclerosis Multiple Sclerosis
C15362 Imaging QA/QC performed indicator

Was image-based QA/QC performed?

Supplemental Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C17459 MS offspring diagnosis indicator

The indicator of whether children were diagnosed with Multiple Sclerosis

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C14696 Berg Balance Scale (BBS) - stand sit scale

The scale for assessment of standing to sitting based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
Displaying 301 - 325 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.