CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C53898	C53898	Stroop Color and Word Test (SCW) - Word residual score	Score (Residual) of the word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F2848-C57041	C57041	Fatigue diary fatigue level value	Value of the level of fatigue an individual has entered within the Fatigue Diary	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
F1288-C58715	C58715	Relative biological sample registry placement location	The location where the relative's DNA sample resides, if known. (Indicate "N/A" if location is not known)	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C53951	C53951	Stroop Color and Word Test (SCW) - Color word T score	Score (T) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C53899	C53899	Stroop Color and Word Test (SCW) - Word T score	Score (T) of the word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F1277-C18770	C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C53952	C53952	Stroop Color and Word Test (SCW) - Interference T score	Score ( Interference T) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C53900	C53900	Stroop Color and Word Test (SCW) - Color raw score	Score (raw) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F2848-C19247	C19247	Subject ID	Subject identification ID	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C18694	C18694	Imaging diffusion measurement other text	The free-text field related to 'Imaging diffusion measurement type' specifying other text. Type of diffusion tensor imaging (DTI) measurement	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1288-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
F1275-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Medical History	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C18670	C18670	Subscribed drug or substance illicitly used category other text	The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1275-C59019	C59019	Birth weight measurement	Measurement in kilograms of the weight of a neonate at birth	Supplemental	Medical History	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C18716	C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15419	C15419	Imaging change in gray matter volume fraction value	Percent change in gray matter volume fraction as compared to a reference scan acquired at an earlier timepoint	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14807	C14807	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - decrease function scale	The scale for accomplishing less because of your vision from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.