CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 612
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11991 Timed 25-Foot Walk (T25FW) - assistive device status

Indicator whether the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)

 Supplemental Timed 25-Foot Walk (T25-FW) False Multiple Sclerosis Multiple Sclerosis
C12000 Timed 25-Foot Walk (T25FW) - trial 2 not completed reason

Specify the type of reason Trial 2 was not completed by the participant/subject, as part of the Timed 25-Foot Walk (T25FW)

 Supplemental Timed 25-Foot Walk (T25-FW) False Multiple Sclerosis Multiple Sclerosis
C10860 Grip strength fatigue percent target hold duration

Duration in seconds that the participant was able to hold the grip device at the indicated percentage of the target value in the grip strength fatigue trial being recorded

 Exploratory Grip Strength Fatigue False Multiple Sclerosis Multiple Sclerosis
C11917 Modified Fatigue Impact Scale (MFIS) - limit ability activity away from home score

Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C11925 Modified Fatigue Impact Scale (MFIS) - unable complete task physical effort score

Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C11933 Modified Fatigue Impact Scale (MFIS) - total score

Total MFIS score (range: 0-84)

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C11911 Modified Fatigue Impact Scale (MFIS) - unable think clearly score

Scale of having been unable to think clearly as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C11992 Timed 25-Foot Walk (T25FW) - unilateral assistance device type

Range, in sides of the body, for which the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)

 Supplemental Timed 25-Foot Walk (T25-FW) False Multiple Sclerosis Multiple Sclerosis
C12001 Timed 25-Foot Walk (T25FW) - more than two attempts indicator

Indicator of whether more than two attempts were required to obtain two successful trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

 Supplemental Timed 25-Foot Walk (T25-FW) False Multiple Sclerosis Multiple Sclerosis
C17783 Grip strength fatigue percent target not attain indicator

Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded

 Exploratory Grip Strength Fatigue False Multiple Sclerosis Multiple Sclerosis
C11918 Modified Fatigue Impact Scale (MFIS) - trouble maintain physical effort long time score

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C11926 Modified Fatigue Impact Scale (MFIS) - think slow down score

Scale for slowed down thinking as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C17824 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less able complete tasks requiring physical effort scale

Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

 Exploratory Grip Strength Fatigue False Multiple Sclerosis Multiple Sclerosis
C11912 Modified Fatigue Impact Scale (MFIS) - clumsy uncoordinated score

Scale for having been clumsy and uncoordinated as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C11993 Timed 25-Foot Walk (T25FW) - bilateral assistance device type

Type of assistive device used by the participant/subject during the assessment, as part of the Timed 25-Foot Walk (T25FW)

 Supplemental Timed 25-Foot Walk (T25-FW) False Multiple Sclerosis Multiple Sclerosis
C12002 Timed 25-Foot Walk (T25FW) - more than two attempts text

Text specification of reason(s) for attempting more than two trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

 Supplemental Timed 25-Foot Walk (T25-FW) False Multiple Sclerosis Multiple Sclerosis
C08085 Sibling alive indicator

Indicator of whether the participant's/subject's sibling is still living

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C00712 Subscribed drug or substance illicitly used category

Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts

 Supplemental Behavioral History False Multiple Sclerosis Multiple Sclerosis
C08076 Breastfed indicator

Indicator of whether the participant/subject was breastfed by his/her mother

 Supplemental Pediatric Developmental History False Multiple Sclerosis Multiple Sclerosis
C08080 Twin sibling indicator

Indicator of whether the participant/subject has a twin brother or sister

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C08081 Twin sibling type

Type of twin the participant/subject has

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C08147 Data source

Source of the data provided on the case report form

 Exploratory History Data Source and Reliability False Multiple Sclerosis Multiple Sclerosis
C00710 Tobacco current use indicator

Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time

 Supplemental Behavioral History False Multiple Sclerosis Multiple Sclerosis
C07111 Center for Epidemiologic Studies Depression Scale (CES-D) - total score

CES-D Total Score - summation of the scores for the 20 items (0-60)

 Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) False Multiple Sclerosis Multiple Sclerosis
Displaying 176 - 200 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.