CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C00311	Birth weight report value	Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian	Supplemental	Medical History	False	Multiple Sclerosis	Multiple Sclerosis
C59005	Imaging spinal cord lesion slice thickness measurement	Value of the thickness of the slice measured in millimeters (mm)	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C59004	Relapsing NMO spectrum disorder type	Type of relapsing Neuromyelitis Optica (NMO) spectrum disorder the participant/subject is experiencing.	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C59003	Progressive multiple sclerosis status	The status of the participant/subjects disease course of progressive Multiple Sclerosis (MS).	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C59002	Relapsing remitting multiple sclerosis status	The status of the participant/subjects disease course of relapsing remitting multiple sclerosis (MS).	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C58716	Specific system relapse type	The specific system(s) involved in the relapse	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C58715	Relative biological sample registry placement location	The location where the relative's DNA sample resides, if known. (Indicate "N/A" if location is not known).	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.	Core	General Core	False	Multiple Sclerosis	Multiple Sclerosis
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth.	Core	General Core	False	Multiple Sclerosis	Multiple Sclerosis
C52785	Woodcock Johnson III (WJ-III) ? Handwriting letter formation error text	Text field describing letter formation errors, as part of the Woodcock Johnson III (WJ-III) tests of achievement.	Supplemental	Woodcock-Johnson III Test of Cognitive Abilities	True	Multiple Sclerosis	Multiple Sclerosis
C52786	Woodcock Johnson III (WJ-III) ? Handwriting line quality type	Type of quality of the subject/participant's handwriting, as part of the Woodcock Johnson III (WJ-III) tests of achievement.	Supplemental	Woodcock-Johnson III Test of Cognitive Abilities	True	Multiple Sclerosis	Multiple Sclerosis
C57041	Fatigue diary fatigue level value	Value of the level of fatigue an individual has entered within the Fatigue Diary	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
C57040	Fatigue diary activity type	Type of activity entered in the Fatigue Diary	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
C57039	Fatigue diary day indicator	Indication of Day (also broken down further into hours) within the Fatigue Diary	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
C57037	Fatigue diary entry start date and time	Start date and time for the fatigue diary entry	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
C57038	Fatigue diary entry end date and time	End date and time for the fatigue diary entry	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
C57036	Visual analog severity scale	Scale related to the severity of fatigue being experienced currently	Exploratory	Fatigue Visual Analog Scale	False	Multiple Sclerosis	Multiple Sclerosis
C55985	California Verbal Learning Test- Second Edition (CVLT-II) - Total recognition discriminability standard score	Total standard score for recognition discriminability of the long delay trials, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Multiple Sclerosis	Multiple Sclerosis
C55984	California Verbal Learning Test- Second Edition (CVLT-II) - Total recognition discriminability raw score	Total raw score for recognition discriminability of the long delay trials, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Multiple Sclerosis	Multiple Sclerosis
C55983	California Verbal Learning Test - Second Edition (CVLT-II) - Total trial 1 5 standard score	Total standard score for trials 1-5, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Multiple Sclerosis	Multiple Sclerosis
C55982	California Verbal Learning Test - Second Edition (CVLT-II) - T-score	T-score, calculated based on performance in trials 1-5, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Multiple Sclerosis	Multiple Sclerosis
C55981	California Verbal Learning Test - Second Edition (CVLT - II) - Trial correct word number	Number of correct words recited by the subject for given trial/list, as part of California Verbal Learning Test- Second Edition (CVLT-II). Also used as a trial/list raw score.	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Multiple Sclerosis	Multiple Sclerosis
C55980	California Verbal Learning Test - Second Edition (CVLT-II) - Long delay forced choice recognition trial total accuracy score	Total accuracy score for long delay forced choice recognition trials, recorded in percentile, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Multiple Sclerosis	Multiple Sclerosis
C55979	California Verbal Learning Test - Second Edition (CVLT-II) - Across trial consistency score	Across trials consistency score, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Multiple Sclerosis	Multiple Sclerosis
C55978	California Verbal Learning Test - Second Edition (CVLT-II) - Total false positive standard score	Total standard score for false-positives produced by the subject, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.