CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1733
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00311 Birth weight report value

Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian

Supplemental Medical History Multiple Sclerosis Multiple Sclerosis
C59005 Imaging spinal cord lesion slice thickness measurement

Value of the thickness of the slice measured in millimeters (mm)

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C59004 Relapsing NMO spectrum disorder type

Type of relapsing Neuromyelitis Optica (NMO) spectrum disorder the participant/subject is experiencing.

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C59003 Progressive multiple sclerosis status

The status of the participant/subjects disease course of progressive Multiple Sclerosis (MS).

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C59002 Relapsing remitting multiple sclerosis status

The status of the participant/subjects disease course of relapsing remitting multiple sclerosis (MS).

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C58716 Specific system relapse type

The specific system(s) involved in the relapse

Supplemental Relapse Multiple Sclerosis Multiple Sclerosis
C58715 Relative biological sample registry placement location

The location where the relative's DNA sample resides, if known. (Indicate "N/A" if location is not known).

Supplemental Genetics Multiple Sclerosis Multiple Sclerosis
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.

Core General Core Multiple Sclerosis Multiple Sclerosis
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

Core General Core Multiple Sclerosis Multiple Sclerosis
C52785 Woodcock Johnson III (WJ-III) ? Handwriting letter formation error text

Text field describing letter formation errors, as part of the Woodcock Johnson III (WJ-III) tests of achievement.

Supplemental Woodcock-Johnson III Test of Cognitive Abilities Multiple Sclerosis Multiple Sclerosis
C52786 Woodcock Johnson III (WJ-III) ? Handwriting line quality type

Type of quality of the subject/participant's handwriting, as part of the Woodcock Johnson III (WJ-III) tests of achievement.

Supplemental Woodcock-Johnson III Test of Cognitive Abilities Multiple Sclerosis Multiple Sclerosis
C57041 Fatigue diary fatigue level value

Value of the level of fatigue an individual has entered within the Fatigue Diary

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C57040 Fatigue diary activity type

Type of activity entered in the Fatigue Diary

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C57039 Fatigue diary day indicator

Indication of Day (also broken down further into hours) within the Fatigue Diary

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C57037 Fatigue diary entry start date and time

Start date and time for the fatigue diary entry

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C57038 Fatigue diary entry end date and time

End date and time for the fatigue diary entry

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C57036 Visual analog severity scale

Scale related to the severity of fatigue being experienced currently

Exploratory Fatigue Visual Analog Scale Multiple Sclerosis Multiple Sclerosis
C55985 California Verbal Learning Test- Second Edition (CVLT-II) - Total recognition discriminability standard score

Total standard score for recognition discriminability of the long delay trials, as part of the California Verbal Learning Test (CVLT-II).

Supplemental California Verbal Learning Test - Second Edition (CVLT-II) Multiple Sclerosis Multiple Sclerosis
C55984 California Verbal Learning Test- Second Edition (CVLT-II) - Total recognition discriminability raw score

Total raw score for recognition discriminability of the long delay trials, as part of the California Verbal Learning Test (CVLT-II).

Supplemental California Verbal Learning Test - Second Edition (CVLT-II) Multiple Sclerosis Multiple Sclerosis
C55983 California Verbal Learning Test - Second Edition (CVLT-II) - Total trial 1 5 standard score

Total standard score for trials 1-5, as part of the California Verbal Learning Test (CVLT-II).

Supplemental California Verbal Learning Test - Second Edition (CVLT-II) Multiple Sclerosis Multiple Sclerosis
C55982 California Verbal Learning Test - Second Edition (CVLT-II) - T-score

T-score, calculated based on performance in trials 1-5, as part of the California Verbal Learning Test (CVLT-II).

Supplemental California Verbal Learning Test - Second Edition (CVLT-II) Multiple Sclerosis Multiple Sclerosis
C55981 California Verbal Learning Test - Second Edition (CVLT - II) - Trial correct word number

Number of correct words recited by the subject for given trial/list, as part of California Verbal Learning Test- Second Edition (CVLT-II). Also used as a trial/list raw score.

Supplemental California Verbal Learning Test - Second Edition (CVLT-II) Multiple Sclerosis Multiple Sclerosis
C55980 California Verbal Learning Test - Second Edition (CVLT-II) - Long delay forced choice recognition trial total accuracy score

Total accuracy score for long delay forced choice recognition trials, recorded in percentile, as part of the California Verbal Learning Test (CVLT-II).

Supplemental California Verbal Learning Test - Second Edition (CVLT-II) Multiple Sclerosis Multiple Sclerosis
C55979 California Verbal Learning Test - Second Edition (CVLT-II) - Across trial consistency score

Across trials consistency score, as part of the California Verbal Learning Test (CVLT-II).

Supplemental California Verbal Learning Test - Second Edition (CVLT-II) Multiple Sclerosis Multiple Sclerosis
C55978 California Verbal Learning Test - Second Edition (CVLT-II) - Total false positive standard score

Total standard score for false-positives produced by the subject, as part of the California Verbal Learning Test (CVLT-II).

Supplemental California Verbal Learning Test - Second Edition (CVLT-II) Multiple Sclerosis Multiple Sclerosis
Displaying 1 - 25 of 1733

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.