CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 226 - 250 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15517 Imaging tissue integrity normal appearing gray matter measurement indicator

Whether measurements of the tissue integrity of normal appearing gray matter were taken

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C17444 Clinical event or milestone 2 year word combination indicator

Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking in two word combinations by 2 years which is pertinent to the disease or disorder

 Supplemental Pediatric Developmental History False Multiple Sclerosis Multiple Sclerosis
C15413 Imaging change in ventricular volume fraction value

Percent change in ventricular volume fraction as compared to a reference scan acquired at an earlier timepoint

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C19047 Neuromyelitis Optica (NMO) spectrum disorder other text

The free-text field related to 'Neuromyelitis Optica (NMO) spectrum disorder type' specifying other text. Type of Neuromyelitis Optica (NMO) spectrum disorder experienced by participant/subject

 Supplemental Diagnosis and Disease Characteristics False Multiple Sclerosis Multiple Sclerosis
C14803 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - not driving reason

The reason giving up driving based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C16204 State or province of residence text

Abbreviation for the state or province where the participant/subject currently lives

 Supplemental Demographics False Multiple Sclerosis Multiple Sclerosis
C15427 Imaging change in gray matter lesion volume value

Change in volume of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter

 Exploratory Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C14811 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - frustrated scale

The scale for frustration based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C19006 Imaging brain measured structure other text

The free-text field related to 'Imaging brain measured structure type' specifying other text. The structure of the brain volume measurement

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C16109 System deficit type indicator

Indicates whether the symptom(s)/deficit was present in the system

 Supplemental Relapse False Multiple Sclerosis Multiple Sclerosis
C15442 Imaging central cerebral volume measurement

Central cerebral volume measurement

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C14819 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty bill accuracy scale

The scale for difficulty determining bill accuracy, from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15328 Imaging T2 lesion volume change measurement

Absolute or percent change in T2 lesion volume as compared to a reference scan acquired at an earlier timepoint

 Supplemental-Highly Recommended Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C14827 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - irritability scale

The scale for irritability based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15375 Imaging Gadolinium-enhancing lesion count

Total number of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C16125 Acute disseminated encephalomyelitis (ADEM) clinical course type

The diagnosed type of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject

 Supplemental Diagnosis and Disease Characteristics False Multiple Sclerosis Multiple Sclerosis
C14787 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - general health scale

The scale of general health as requested on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15491 Imaging brain measured structure type

The structure of the brain volume measurement

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C15373 Imaging retinal nerve fiber layer thickness in inferior quadrant abnormal status

This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the inferior quadrant of the eye is thin compared to the rest of the population

 Exploratory Imaging OCT Analysis - RNFL Thickness Analysis False Multiple Sclerosis Multiple Sclerosis
C15372 Imaging thalamus lesion count

Total number of lesion(s) located in the thalamus

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C16162 Tobacco days smoked in past 30 days count

Number of days during PAST 30 DAYS that participant/subject smoked a cigarette

 Supplemental Behavioral History False Multiple Sclerosis Multiple Sclerosis
C16147 Family history relative death cause text

Cause of death of the participant/subject's relative, if applicable

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C15333 Optical coherence tomography (OCT) oculus dexter (OD) macula volume measurement

Total macula volume of the right eye

 Exploratory Imaging OCT Analysis - Spectralis Report Analysis False Multiple Sclerosis Multiple Sclerosis
C15397 Imaging Gadolinium-enhancing lesion technique type

Method used to determine the lesions for gadolinium (Gd)-enhancing lesions on T1+Gd image

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C15344 Optical coherence tomography (OCT) Cirrus-Zeiss performed indicator

The indicator for whether the spectral-domain optical coherence tomography (OCT) (Cirrus - Zeiss) was performed

 Exploratory Imaging Optical Coherence Tomography (OCT) Information False Multiple Sclerosis Multiple Sclerosis
Displaying 226 - 250 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.