CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 612

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C16187	Vaccine type	Vaccination received by pediatric patient	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
C19004	Imaging magnetization transfer ratio (MTR) measurement other text	The free-text field related to 'Imaging magnetization transfer ratio (MTR) measurement type' specifying other text. Magnetization transfer ratio measure	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C16145	Family history relative birth date	The date of birth of a related family members to the participant/subject	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
C16107	Symptom associated with new neurologic findings indicator	Indicates whether the symptom(s) are associated with new neurologic findings	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C15466	Imaging tissue integrity region type	The areas of the brain where tissue integrity is measured	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C15423	Imaging gray matter lesion count	Total number of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C15361	Imaging signal strength quality value	Signal strength of the OCT scan, based on signal to noise ratio	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
C19004	Imaging magnetization transfer ratio (MTR) measurement other text	The free-text field related to 'Imaging magnetization transfer ratio (MTR) measurement type' specifying other text. Magnetization transfer ratio measure	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C15370	Imaging oculus dexter (OD) refraction value	The refraction of the right eye (OD)	Exploratory	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
C16153	Family history relative type with MS number	For the specified relative type, the total number of relatives diagnosed with multiple sclerosis (MS)	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
C15438	Imaging change in normal appearing white matter value	Change in tissue integrity in normal-appearing white matter as compared to a reference scan acquired at an earlier timepoint	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C15388	Imaging retinal nerve fiber layer average overall thickness abnormal status	This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the eye is thin compared to the rest of the population	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
C15367	Imaging cortical lesion count	Total number of lesions located in the brain cortex or lesions in the subcortical WM also involving the cortex	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C15316	Optical coherence tomography (OCT) macular cube scan pattern type	The scan pattern used for the optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis -Cirrus Macular Thickness	False	Multiple Sclerosis	Multiple Sclerosis
C16168	Pregnancy self or spouse number	Number of each pregnancy of participant/subject or participant/subject's partner	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
C17455	MS spouse diagnosis indicator	The indicator of whether a spouse was diagnosed with Multiple Sclerosis	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
C16124	First optic neuritis and first myelitis onset elapsed time value	Time between the onset of the first optic neuritis and first myelitis	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C15453	Imaging thalamus volume measurement	Thalamus volume measurement	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C14699	Berg Balance Scale (BBS) - unsupport feet together scale	The scale for assessment of standing unsupported with feet together based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Multiple Sclerosis	Multiple Sclerosis
C15396	Imaging T1 hypointense lesion total volume measurement	Total volume of all focal T1-hypointense brain lesions (on this scan)	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C15366	Imaging new basal ganglia lesion count	Total number of new lesions located in the basal ganglia (excluding the thalamus)	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C15327	Optical coherence tomography (OCT) signal strength value	Signal strength of optical coherence tomography (OCT) machine when scanning macula of eye (1-10)	Exploratory	Imaging OCT Analysis - Stratus Retinal Thickness Report	False	Multiple Sclerosis	Multiple Sclerosis
C16176	Hormone therapy indicator	Indicates whether participant/subject has taken hormonal therapy	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
C15478	Imaging gray matter lesion technique type	Method used to determine the number of lesions	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C16133	Treatment for clinical event indicator	Indicates whether the participant/subject received treatment for the clinical event	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.