CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 612

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C15644	Imaging QA/QC result	Results of image-based QA/QC	Supplemental	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
C14698	Berg Balance Scale (BBS) - unsupport stand closed eyes scale	The scale for assessment of standing unsupported with eyes closed based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Multiple Sclerosis	Multiple Sclerosis
C15457	Imaging spinal cord lesion count	Total number of lesions located at any level of the spinal cord	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C15320	Optical coherence tomography (OCT) retinal thickness laterality type	The side of the eyes examined during retinal thickness analysis by optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis - Stratus Retinal Thickness Report	False	Multiple Sclerosis	Multiple Sclerosis
C15347	Optical coherence tomography average retinal nerve fiber layer thickness measurement	Average overall retinal nerve fiber layer (RNFL) thickness	Exploratory	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
C15346	Imaging regional T2 lesion count performed indicator	Whether regional T2 lesion counts were performed	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C15460	Imaging spinal cord lesion location type	Specifies the location of lesions with respect to cord cross-sectional area involving spinal gray matter	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C15380	Imaging retinal nerve fiber layer thickness in temporal quadrant abnormal status	This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the temporal quadrant of the eye is thin compared to the rest of the population	Exploratory	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
C15379	Imaging T2W image technique type	Method used to determine the total volume of white matter hyperintensities on T2-weighted image	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C16206	Family history gender type	Reported gender of the relative. Gender is the socially constructed identity of sex	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
C15406	Imaging change in brain volume fraction percentage value	Percent change in whole brain volume fraction as compared to a reference scan acquired at an earlier timepoint	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C14799	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty visit people scale	The scale for difficulty visiting others from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
C15652	Imaging tissue integrity measure technique type	Type of imaging sequence used	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C16170	Menstrual period occurrence indicator	Indicates whether participant/subject has ever had a menstrual period	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
C17458	MS first cousin diagnosis indicator	The indicator of whether any first cousins were diagnosed with Multiple Sclerosis	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
C15419	Imaging change in gray matter volume fraction value	Percent change in gray matter volume fraction as compared to a reference scan acquired at an earlier timepoint	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C14807	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - decrease function scale	The scale for accomplishing less because of your vision from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
C19002	Imaging brain volume technique other text	The free-text field related to 'Imaging brain volume technique type' specifying other text. Image analysis method used to calculate whole brain volume	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C16124	First optic neuritis and first myelitis onset elapsed time value	Time between the onset of the first optic neuritis and first myelitis	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C16178	Post-menopausal cause type	Cause or reason for the post-menopausal period in the female participant/subject	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
C15434	Imaging white matter volume fraction value	Ratio of white matter volume to total intracranial volume or other head-size normalization volume	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C14815	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - embarrass scale	The scale for embarrassment based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
C16133	Treatment for clinical event indicator	Indicates whether the participant/subject received treatment for the clinical event	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C16171	Menstrual period first occurrence age value	Youngest age the female participant/subject had a menstrual period, otherwise known as the age of menarche	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
C17443	Clinical event or milestone 1 year speech indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking his/her first words by 12 months which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.