CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1276-C16149	C16149	Biological parent twin type	Type of twin the biological parent has	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15354	C15354	Optical coherence tomography (OCT) assisted reproduction technology (ART) mean value	The number of B-scan images (frames) averaged assisted reproduction technology (ART)	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15407	C15407	Imaging ventricular volume measurement	Volume measurement of the ventricles	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15355	C15355	Optical coherence tomography (OCT) ganglion cell layer thickness performed indicator	The indicator for whether ganglion cell layer thickness (segmentation) optical coherence tomography (OCT) (Cirrus-Zeiss) was performed	Exploratory	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16163	C16163	Hormone therapy name	The name of the hormone therapy taken by the participant	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C17451	C17451	MS aunt diagnosis total count	The total number of aunts that were diagnosed with Multiple Sclerosis	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15380	C15380	Imaging retinal nerve fiber layer thickness in temporal quadrant abnormal status	This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the temporal quadrant of the eye is thin compared to the rest of the population	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15430	C15430	Imaging volume technique reference text	Name of software package used, website, and/or a citation to a journal article referencing the particular technique used to find brain volume	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1294-C15342	C15342	Optical coherence tomography low contrast Sloan letter chart 1.25 binocular count	The number of letters read correctly at low contrast on a Sloan letter chart at 1.25% at 2 meters	Exploratory	Imaging OCT Analysis - Contrast and Visual Acuity	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C15368	C15368	Imaging estimated glomerular filtration rate (eGFR) performed date and time	Date and time (if applicable) estimated glomerular filtration rate (eGFR) performed	Supplemental	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1305-C14697	C14697	Berg Balance Scale (BBS) - transfer scale	The scale for assessment of transfers based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15453	C15453	Imaging thalamus volume measurement	Thalamus volume measurement	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1295-C15359	C15359	Imaging average macular thickness abnormal status	The indicator is the average macular thickness is abnormally low	Exploratory	Imaging OCT Analysis -Cirrus Macular Thickness	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15350	C15350	Imaging new juxtacortical lesion count	Total number of new focal T2-hyperintense brain lesions that are in contact with the cortex (with no intervening white matter)	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16120	C16120	MS current disease course type	Current Multiple Sclerosis (MS) disease course the participant/subject is experiencing	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1305-C14704	C14704	Berg Balance Scale (BBS) - alternate foot step up scale	The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15383	C15383	Imaging Gadolinium-enhancing lesion change in volume measurement	Change in volume of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C14144	C14144	Family history assessment date	Date family history was collected from the participant/ subject, family member/friend, and/or the medical record	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16128	C16128	CNS other demyelinating disorder type	Type of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14790	C14790	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - pain scale	The scale for pain based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15504	C15504	Imaging spinal cord volume/cross-sectional area technique type	Method used to determine the cord cross-sectional area or volume as a measure of cord atrophy	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16191	C16191	Chicken pox infection age value	The age value of participant/subject when they experienced a natural infection of chicken pox	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15405	C15405	Imaging brain volume fraction value	Ratio of whole brain parenchymal volume to total intracranial volume or other head-size normalization volume	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16138	C16138	Symptoms initial category indicator	The presence or absence of symptoms first experienced by the participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14798	C14798	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty matching clothes scale	The scale for difficulty finding matching clothing from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.