CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 51 - 75 of 612

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1291-C19025	C19025	Imaging tissue integrity measure technique other text	The free-text field related to 'Imaging tissue integrity measure technique type' specifying other text. Type of imaging sequence used	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16117	C16117	Protocol defined qualifying relapse indicator	If applicable, is this a protocol defined qualifying relapse according to the definition set in the study protocol	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15447	C15447	Imaging change in cortical thickness value	Change in cortical thickness	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14822	C14822	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty outdoor activity scale	The scale for difficulty outdoor activity from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15350	C15350	Imaging new juxtacortical lesion count	Total number of new focal T2-hyperintense brain lesions that are in contact with the cortex (with no intervening white matter)	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16120	C16120	MS current disease course type	Current Multiple Sclerosis (MS) disease course the participant/subject is experiencing	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1305-C14704	C14704	Berg Balance Scale (BBS) - alternate foot step up scale	The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15383	C15383	Imaging Gadolinium-enhancing lesion change in volume measurement	Change in volume of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C14144	C14144	Family history assessment date	Date family history was collected from the participant/ subject, family member/friend, and/or the medical record	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16128	C16128	CNS other demyelinating disorder type	Type of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14790	C14790	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - pain scale	The scale for pain based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15504	C15504	Imaging spinal cord volume/cross-sectional area technique type	Method used to determine the cord cross-sectional area or volume as a measure of cord atrophy	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16191	C16191	Chicken pox infection age value	The age value of participant/subject when they experienced a natural infection of chicken pox	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15405	C15405	Imaging brain volume fraction value	Ratio of whole brain parenchymal volume to total intracranial volume or other head-size normalization volume	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16138	C16138	Symptoms initial category indicator	The presence or absence of symptoms first experienced by the participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14798	C14798	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty matching clothes scale	The scale for difficulty finding matching clothing from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15650	C15650	Imaging basal ganglia lesion count	Total number of lesions located in the basal ganglia (excluding the thalamus)	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C17452	C17452	MS aunt uncle diagnosis indicator	The indicator of whether any aunts and/or uncles were diagnosed with Multiple Sclerosis	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15385	C15385	Imaging retinal nerve fiber layer average overall thickness measurement	Average overall retinal nerve fiber layer (RNFL) thickness (value is in the center of the circle on the report, marked "G")	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15431	C15431	Imaging white matter volume measurement	Volume of white matter in the brain	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1294-C15348	C15348	Optical coherence tomography Pelli-Robson contrast sensitivity test log score value	The log score of the Pelli-Robson Contrast Sensitivity Test	Exploratory	Imaging OCT Analysis - Contrast and Visual Acuity	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C15644	C15644	Imaging QA/QC result	Results of image-based QA/QC	Supplemental	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1305-C14698	C14698	Berg Balance Scale (BBS) - unsupport stand closed eyes scale	The scale for assessment of standing unsupported with eyes closed based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15457	C15457	Imaging spinal cord lesion count	Total number of lesions located at any level of the spinal cord	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1296-C15320	C15320	Optical coherence tomography (OCT) retinal thickness laterality type	The side of the eyes examined during retinal thickness analysis by optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis - Stratus Retinal Thickness Report	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 51 - 75 of 612

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.