CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 426 - 450 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11917 Modified Fatigue Impact Scale (MFIS) - limit ability activity away from home score

Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C17864 Timed 25-Foot Walk (T25FW) - trial number

Number assigned for identification to the trial currently being assessed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

 Supplemental Timed 25-Foot Walk (T25-FW) False Multiple Sclerosis Multiple Sclerosis
C11926 Modified Fatigue Impact Scale (MFIS) - think slow down score

Scale for slowed down thinking as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C17824 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less able complete tasks requiring physical effort scale

Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

 Exploratory Grip Strength Fatigue False Multiple Sclerosis Multiple Sclerosis
C11909 Modified Fatigue Impact Scale (MFIS) - less alert score

Scale for being less alert as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C17783 Grip strength fatigue percent target not attain indicator

Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded

 Exploratory Grip Strength Fatigue False Multiple Sclerosis Multiple Sclerosis
C11996 Timed 25-Foot Walk (T25FW) - trial 1 circumstances affecting performance text

Text description of any circumstances that affected the participant/subject's performance on or completion of the trial being recorded, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

 Supplemental Timed 25-Foot Walk (T25-FW) False Multiple Sclerosis Multiple Sclerosis
C11918 Modified Fatigue Impact Scale (MFIS) - trouble maintain physical effort long time score

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C11919 Modified Fatigue Impact Scale (MFIS) - difficult make decision score

Scale for having had difficulty making decisions as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C11927 Modified Fatigue Impact Scale (MFIS) - trouble concentrate score

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C17825 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less alert scale

Scale for being less alert as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C10852 Grip strength test performed date and time

Date (and time, if applicable and known) that grip strength testing was done

 Exploratory Grip Strength Fatigue False Multiple Sclerosis Multiple Sclerosis
C11910 Modified Fatigue Impact Scale (MFIS) - difficulty pay attention long period score

Scale for having difficulty paying attention for long periods of time as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C10814 Parents biologically related indicator

The indicator whether the subject's/participant's parents are biologically related

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C11997 Timed 25-Foot Walk (T25FW) - trial 1 not completed reason

Indicator of the reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

 Supplemental Timed 25-Foot Walk (T25-FW) False Multiple Sclerosis Multiple Sclerosis
C11920 Modified Fatigue Impact Scale (MFIS) - less motivate activity require think score

Scale for having been less motivated to do anything that requires thinking as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C11928 Modified Fatigue Impact Scale (MFIS) - limit physical activity score

Scale for having limited physical activities as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C00015 Education year count

Number of years of education completed (age 5 and beyond)

 Supplemental-Highly Recommended Social Status False Multiple Sclerosis Multiple Sclerosis
C17826 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - limited ability away home scale

Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C10854 Grip device width setting value

Value of the width setting on the grip device used to test the participant/subject's grip strength

 Exploratory Grip Strength Fatigue False Multiple Sclerosis Multiple Sclerosis
C11911 Modified Fatigue Impact Scale (MFIS) - unable think clearly score

Scale of having been unable to think clearly as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C11998 Timed 25-Foot Walk (T25FW) - trial 2 duration

The time it takes the participant/subject to walk 25 feet, as part of the Timed 25-Foot Walk (T25FW)

 Supplemental Timed 25-Foot Walk (T25-FW) False Multiple Sclerosis Multiple Sclerosis
C11999 Timed 25-Foot Walk (T25FW) - trial 2 circumstances affecting performance text

Record in text any circumstances that affected the patient's performance for a completed Trial 2, as part of the Timed 25-Foot Walk (T25FW)

 Supplemental Timed 25-Foot Walk (T25-FW) False Multiple Sclerosis Multiple Sclerosis
C11921 Modified Fatigue Impact Scale (MFIS) - muscle weak score

Scale for feeling weak in muscles as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
Displaying 426 - 450 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.