CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 326 - 350 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C16118 MS current diagnosis type

The current Multiple Sclerosis (MS) diagnosis of the participant/subject

 Core Diagnosis and Disease Characteristics False Multiple Sclerosis Multiple Sclerosis
C14828 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - home alone scale

The scale for remaining home based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15378 Imaging new Gadolinium-enhancing lesion count

Number of new focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

 Supplemental-Highly Recommended Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C16126 Acute disseminated encephalomyelitis (ADEM) characteristics type

The signs and characteristics of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject

 Supplemental Diagnosis and Disease Characteristics False Multiple Sclerosis Multiple Sclerosis
C14788 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - overall eye scale

The scale for overall assessment of eye from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15495 Imaging other regional volumetric gap value

Gap on the other regional volumetric image optical slice

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C16188 Vaccine received indicator

Indicates whether participant/subject received the vaccine

 Supplemental Pediatric Developmental History False Multiple Sclerosis Multiple Sclerosis
C17402 Site name

The name of the site for the study

 Exploratory Fatigue/Activity Record and Diary False Multiple Sclerosis Multiple Sclerosis
C11514 Bladder Control Scale (BLCS) - almost lost control bladder 4 week scale

The scale related to almost lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Multiple Sclerosis Multiple Sclerosis
C11522 Bowel Control Scale (BWCS) - bowel problems restrict lifestyle 4 week scale

Scale measuring how often bowel control problems restricted overall lifestyle in the past 4 week as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Multiple Sclerosis Multiple Sclerosis
C11515 Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale

The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Multiple Sclerosis Multiple Sclerosis
C11523 Bowel Control Scale (BWCS) - sum score value

Sum of the score for questions in the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Multiple Sclerosis Multiple Sclerosis
C11133 History data not obtained reason

Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

 Exploratory History Data Source and Reliability False Multiple Sclerosis Multiple Sclerosis
C11516 Bladder Control Scale (BLCS) - restricted lifestyle 4 week severity

The scale related to restricted overall lifestyle because of bladder problems as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Multiple Sclerosis Multiple Sclerosis
C11134 History data reliability type

Overall assessment of the reliability of the medical/family history data obtained

 Exploratory History Data Source and Reliability False Multiple Sclerosis Multiple Sclerosis
C11517 Bladder Control Scale (BLCS) - scores sum value

Sum of scores from questions 1 through 4 (0-22) as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Multiple Sclerosis Multiple Sclerosis
C10676 Country of residence code

Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

 Supplemental Demographics False Multiple Sclerosis Multiple Sclerosis
C11518 Bowel Control Scale (BWCS) - constipation 4 week scale

Scale assessing constipation in the past 4 weeks, as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Multiple Sclerosis Multiple Sclerosis
C18824 History data not obtained other text

The free-text field related to 'History data not obtained reason' specifying other text. Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

 Exploratory History Data Source and Reliability False Multiple Sclerosis Multiple Sclerosis
C11519 Bowel Control Scale (BWCS) - bowel control loss 4 week scale

Scale assessing how often the participant/subject lost control of bowels or had an accident in the past 4 weeks as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Multiple Sclerosis Multiple Sclerosis
C11520 Bowel Control Scale (BWCS) - bowel control almost lost 4 week scale

Scale assessing how often the participant/subject almost lost control of his bowels or almost had an accident in the past four weeks as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Multiple Sclerosis Multiple Sclerosis
C18806 Country of residence other text

The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

 Supplemental Demographics False Multiple Sclerosis Multiple Sclerosis
C11513 Bladder Control Scale (BLCS) - lost control bladder 4 week scale

The scale related to lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Multiple Sclerosis Multiple Sclerosis
C11521 Bowel Control Scale (BWCS) - bowel control problems altered activities 4 week scale

Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Multiple Sclerosis Multiple Sclerosis
C14708 Godin Leisure-Time Exercise Questionnaire - strenuous exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing strenuous exercise (e.g., running, jogging, hockey, football, soccer, squash, basketball, cross country skiing, judo, roller skating, vigorous swimming, vigorous long distance bicycling)

 Supplemental Godin Leisure-Time Exercise Questionnaire False Multiple Sclerosis Multiple Sclerosis
Displaying 326 - 350 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.