CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19048 Acute disseminated encephalomyelitis (ADEM) clinical course other text

The free-text field related to 'Acute disseminated encephalomyelitis (ADEM) clinical course type' specifying other text. The diagnosed type of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject

 Supplemental Diagnosis and Disease Characteristics False Multiple Sclerosis Multiple Sclerosis
C14804 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty driving scale

The scale for difficulty driving based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C18999 Imaging T2W image technique other text

The free-text field related to 'Imaging T2W image technique type' specifying other text. Method used to determine the total volume of white matter hyperintensities on T2-weighted image

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C16100 Symptoms new or worsening neurologic indicator

Indicates whether the participant/subject has new neurologic symptoms or an acute worsening of preexisting neurologic symptoms

 Supplemental-Highly Recommended Relapse False Multiple Sclerosis Multiple Sclerosis
C15430 Imaging volume technique reference text

Name of software package used, website, and/or a citation to a journal article referencing the particular technique used to find brain volume

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C14812 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - decrease control life scale

The scale for decrease control over life based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C19007 Imaging spinal cord lesion technique other text

The free-text field related to 'Imaging spinal cord lesion technique type' specifying other text. Method used to determine the number of lesions located in the spinal cord

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C16110 Symptom associated with new neurologic findings ongoing indicator

Indicates whether the symptom(s) associated with new neurologic findings are ongoing

 Supplemental Relapse False Multiple Sclerosis Multiple Sclerosis
C15444 Imaging change in central cerebral volume value

Change in central cerebral volume

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C14820 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty personal care scale

The scale for difficulty personal care from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15337 New enlarging T2 lesion count

The number of new or enlarging non-enhancing T2 lesions

 Supplemental-Highly Recommended Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C14144 Family history assessment date

Date family history was collected from the participant/ subject, family member/friend, and/or the medical record

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C16118 MS current diagnosis type

The current Multiple Sclerosis (MS) diagnosis of the participant/subject

 Core Diagnosis and Disease Characteristics False Multiple Sclerosis Multiple Sclerosis
C15457 Imaging spinal cord lesion count

Total number of lesions located at any level of the spinal cord

 Exploratory Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C15374 Imaging retinal nerve fiber layer thickness in inferior quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the inferior quadrant

 Exploratory Imaging OCT Analysis - RNFL Thickness Analysis False Multiple Sclerosis Multiple Sclerosis
C15375 Imaging Gadolinium-enhancing lesion count

Total number of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C16148 Biological parent twin indicator

Indicates whether the biological parent is a twin

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C15341 Optical coherence tomography (OCT) oculus sinister (OS) macula volume measurement

Total macula volume of the left eye

 Exploratory Imaging OCT Analysis - Spectralis Report Analysis False Multiple Sclerosis Multiple Sclerosis
C15405 Imaging brain volume fraction value

Ratio of whole brain parenchymal volume to total intracranial volume or other head-size normalization volume

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C15349 Optical coherence tomography (OCT) Spectralis-Heidelberg performed indicator

The indicator for spectral-domain optical coherence tomography (OCT) (Spectralis-Heidelberg) being performed

 Exploratory Imaging Optical Coherence Tomography (OCT) Information False Multiple Sclerosis Multiple Sclerosis
C17450 MS first cousin diagnosis total count

The total number of first cousins that were diagnosed with Multiple Sclerosis

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C15377 Imaging retinal nerve fiber layer thickness in temporal quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the temporal quadrant

 Exploratory Imaging OCT Analysis - Spectralis Report Analysis False Multiple Sclerosis Multiple Sclerosis
C15425 Imaging gray matter lesion volume measurement

Volume of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C15334 Optical coherence tomography low contrast Sloan letter chart 2.5 binocular count

The number of letters read correctly at low contrast on a Sloan letter chart at 2.5% from 2 meters

 Exploratory Imaging OCT Analysis - Contrast and Visual Acuity False Multiple Sclerosis Multiple Sclerosis
C17459 MS offspring diagnosis indicator

The indicator of whether children were diagnosed with Multiple Sclerosis

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
Displaying 276 - 300 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.