CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14700 Berg Balance Scale (BBS) - reach forward scale

The scale for assessment of reaching forward with outstretched arm while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C15460 Imaging spinal cord lesion location type

Specifies the location of lesions with respect to cord cross-sectional area involving spinal gray matter

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15335 Optical coherence tomography (OCT) total macula volume measurement

Total macula volume by optical coherence tomography (OCT)

Exploratory Imaging OCT Analysis - Stratus Retinal Thickness Report Multiple Sclerosis Multiple Sclerosis
C15360 Imaging retinal nerve fiber layer thickness in superior quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the superior quadrant

Exploratory Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
C16186 Education performance status

Participant/subject's cognitive status with regards to education

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C15357 Imaging periventricular lesion count

Total number of focal T2-hyperintense brain lesions that are in contact with the ventricular system

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15466 Imaging tissue integrity region type

The areas of the brain where tissue integrity is measured

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15318 Imaging follow-up scan indicator

Indicates if scan is a follow-up

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C15386 Imaging Gadolinium-enhancing lesion technique reference name

Name of software package used, website, and/or a citation to a journal article referencing the particular technique used to find Gadolinium-enhancing lesions

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C16152 Sibling adopted before age one indicator

Indicates whether participant/subject has any adopted siblings who were adopted before one year of age

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C15365 Imaging retinal nerve fiber layer thickness in superior quadrant abnormal status

Whether the average retinal nerve fiber layer (RNFL) thickness of the superior quadrant of the eye is thin compared to the rest of the population

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C15415 Imaging gray matter volume measurement

Volume of the gray matter

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15644 Imaging QA/QC result

Results of image-based QA/QC

Supplemental Imaging Optical Coherence Tomography (OCT) Information Multiple Sclerosis Multiple Sclerosis
C16167 Given birth or fathered a child indicator

Indicates whether participant/subject has ever given birth or fathered a child

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C17454 MS sibling diagnosis indicator

The indicator of whether a sibling was diagnosed with Multiple Sclerosis

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C19004 Imaging magnetization transfer ratio (MTR) measurement other text

The free-text field related to 'Imaging magnetization transfer ratio (MTR) measurement type' specifying other text. Magnetization transfer ratio measure

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C16106 MS relapse onset within the last 7 days indicator

Indicates whether onset of relapse was within the last 7 days

Supplemental Relapse Multiple Sclerosis Multiple Sclerosis
C15438 Imaging change in normal appearing white matter value

Change in tissue integrity in normal-appearing white matter as compared to a reference scan acquired at an earlier timepoint

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14817 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - current eyesight scale

The scale for current eyesight based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15453 Imaging thalamus volume measurement

Thalamus volume measurement

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14825 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - assist others scale

The scale for needing help from others based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15366 Imaging new basal ganglia lesion count

Total number of new lesions located in the basal ganglia (excluding the thalamus)

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16123 Acute myelitis segment anatomic site

The anatomic site(s) of segments in the vertebral column involved in acute myelitis

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C17394 Berg Balance Scale (BBS) - stand one leg scale

The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C15478 Imaging gray matter lesion technique type

Method used to determine the number of lesions

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
Displaying 276 - 300 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.