CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Core General Core Multiple Sclerosis Multiple Sclerosis
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Core Demographics Multiple Sclerosis Multiple Sclerosis
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth

Supplemental General Core Multiple Sclerosis Multiple Sclerosis
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

Core General Core Multiple Sclerosis Multiple Sclerosis
C58677 Gender identity type

Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Core General Core Multiple Sclerosis Multiple Sclerosis
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Supplemental General Core Multiple Sclerosis Multiple Sclerosis
C00020 Ethnicity USA category

Category of ethnicity the participant most closely identifies with

Core General Core Multiple Sclerosis Multiple Sclerosis
C00020 Ethnicity USA category

Category of ethnicity the participant most closely identifies with

Core Demographics Multiple Sclerosis Multiple Sclerosis
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Multiple Sclerosis Multiple Sclerosis
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Multiple Sclerosis Multiple Sclerosis
C16146 Family history relative age at death value

Age at death of the participant/subject's relative, if applicable

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C15495 Imaging other regional volumetric gap value

Gap on the other regional volumetric image optical slice

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C14821 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty recognize others scale

The scale for difficulty recognizing others from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C16119 MS onset course type

Type of onset experienced by participant/subject diagnosed with MS

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C15398 Imaging T1 hypointense lesion change in volume measurement

Change in volume of all focal T1-hypointense brain lesions (on this scan)

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15365 Imaging retinal nerve fiber layer thickness in superior quadrant abnormal status

Whether the average retinal nerve fiber layer (RNFL) thickness of the superior quadrant of the eye is thin compared to the rest of the population

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C15518 Imaging tissue integrity other regional measurements indicator

Whether measurements of the tissue integrity of other brain regions were taken

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15644 Imaging QA/QC result

Results of image-based QA/QC

Supplemental Imaging Optical Coherence Tomography (OCT) Information Multiple Sclerosis Multiple Sclerosis
C14789 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - worry scale

The scale for worrying based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C16127 CNS other demyelinating disorder name

Name of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C15415 Imaging gray matter volume measurement

Volume of the gray matter

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16209 Imaging retinal nerve fiber layer thickness in nasal quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the nasal quadrant

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C17456 MS uncle diagnosis total count

The total number of uncles that were diagnosed with Multiple Sclerosis

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C16189 Vaccine hospitalization indicator

Indicates whether participant/subject was hospitalized due to serious complications from vaccine

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C18999 Imaging T2W image technique other text

The free-text field related to 'Imaging T2W image technique type' specifying other text. Method used to determine the total volume of white matter hyperintensities on T2-weighted image

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.