CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1733
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C14779 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - female sexual function scale

The scale related to female sexual function based on Multiple Sclerosis Quality of Life Scale (MSQOL-54)

Supplemental Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Multiple Sclerosis Multiple Sclerosis
C15326 Optical coherence tomography high contrast visual acuity count

The number of letters read correctly at 3.2 meters as a measurement of high contrast tomography (OCT) visual acuity

Exploratory Imaging OCT Analysis - Contrast and Visual Acuity Multiple Sclerosis Multiple Sclerosis
C15358 Imaging gadolinium administered in window indicator

The indicator for whether gadolinium was administered in the protocol window

Supplemental-Highly Recommended Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C14739 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - bending scale

The scale related to bending based on Multiple Sclerosis Quality of Life Scale (MSQOL-54)

Supplemental Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Multiple Sclerosis Multiple Sclerosis
C15425 Imaging gray matter lesion volume measurement

Volume of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C17458 MS first cousin diagnosis indicator

The indicator of whether any first cousins were diagnosed with Multiple Sclerosis

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C15343 Optical coherence tomography (OCT) total macular volume abnormal status

This variable indicates whether the macular volume is abnormally low based on optical coherence tomography (OCT)

Exploratory Imaging OCT Analysis -Cirrus Macular Thickness Multiple Sclerosis Multiple Sclerosis
C14747 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - difficult perform work physical indicator

The scale related to difficult perform work based on Multiple Sclerosis Quality of Life Scale (MSQOL-54)

Supplemental Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Multiple Sclerosis Multiple Sclerosis
C15440 Imaging timepoint for change in normal appearing white matter value

Timepoint used to calculate change in normal-appearing white matter

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14707 Disease Steps Scale

The scale to describe disease steps

Supplemental Disease Steps (DS) Multiple Sclerosis Multiple Sclerosis
C15321 Imaging T2W brain lesion volume measurement

Total volume of all focal T2-hyperintense brain lesions

Supplemental-Highly Recommended Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14755 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - nervousness scale

The scale related to proportion of nervousness based on Multiple Sclerosis Quality of Life Scale (MSQOL-54)

Supplemental Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Multiple Sclerosis Multiple Sclerosis
C15455 Imaging change in thalamus volume value

Change in thalamus volume

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14715 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - verbal communication frequency

The frequency of verbal communication based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified

Supplemental MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Multiple Sclerosis Multiple Sclerosis
C15371 Imaging new other unspecified lesion count

Total number of other new lesions whose type is not specified

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16124 First optic neuritis and first myelitis onset elapsed time value

Time between the onset of the first optic neuritis and first myelitis

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14763 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - awake scale

The scale related to proportion of time feeling rested after sleep based on Multiple Sclerosis Quality of Life Scale (MSQOL-54)

Supplemental Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Multiple Sclerosis Multiple Sclerosis
C14723 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - relaxation frequency

The frequency of relaxation based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified

Supplemental MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Multiple Sclerosis Multiple Sclerosis
C15395 Imaging new T1 hypointense lesion count

New hypointense lesion number on T1 without antecedent T1-hypointensity on adequate prior MRI scan

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16147 Family history relative death cause text

Cause of death of the participant/subject's relative, if applicable

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C16133 Treatment for clinical event indicator

Indicates whether the participant/subject received treatment for the clinical event

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14771 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - health worry scale

The scale related to proportion of time feeling worried by health based on Multiple Sclerosis Quality of Life Scale (MSQOL-54)

Supplemental Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Multiple Sclerosis Multiple Sclerosis
C15344 Optical coherence tomography (OCT) Cirrus-Zeiss performed indicator

The indicator for whether the spectral-domain optical coherence tomography (OCT) (Cirrus - Zeiss) was performed

Exploratory Imaging Optical Coherence Tomography (OCT) Information Multiple Sclerosis Multiple Sclerosis
C14731 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - love frequency

The frequency of love based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified

Supplemental MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Multiple Sclerosis Multiple Sclerosis
C15411 Imaging ventricular volume fraction value

Ratio of ventricular volume to total intracranial volume or other head-size normalization volume

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
Displaying 1 - 25 of 1733

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.