CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1733
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C15348 Optical coherence tomography Pelli-Robson contrast sensitivity test log score value

The log score of the Pelli-Robson Contrast Sensitivity Test

Exploratory Imaging OCT Analysis - Contrast and Visual Acuity Multiple Sclerosis Multiple Sclerosis
C14839 Activities specific Balance Confidence Scale (ABC-Scale) - chair stand scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when standing on a chair to reach for something

Supplemental Activities Specific Balance Confidence Scale (ABC-Scale) Multiple Sclerosis Multiple Sclerosis
C15364 Imaging juxtacortical lesion count

Total number of focal T2-hyperintense brain lesions that are in contact with the cortex (with no intervening white matter)

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C14720 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - information frequency

The frequency of information based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified.

Supplemental MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Multiple Sclerosis Multiple Sclerosis
C15431 Imaging white matter volume measurement

Volume of white matter in the brain

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15327 Optical coherence tomography (OCT) signal strength value

Signal strength of optical coherence tomography (OCT) machine when scanning macula of eye (1-10)

Exploratory Imaging OCT Analysis - Stratus Retinal Thickness Report Multiple Sclerosis Multiple Sclerosis
C14810 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - remain home scale

The scale for remaining home because of eyesight based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25).

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15517 Imaging tissue integrity normal appearing gray matter measurement indicator

Whether measurements of the tissue integrity of normal appearing gray matter were taken.

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C14768 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - excellent health scale

The description self-reported by the participant/subject to indicate whether they agree that their overall health is excellent based on Multiple Sclerosis Quality of Life Scale (MSQOL-54).

Supplemental Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Multiple Sclerosis Multiple Sclerosis
C14847 Activities specific Balance Confidence Scale (ABC-Scale) - escalator use scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when stepping onto or off of an escalator while holding onto a railing

Supplemental Activities Specific Balance Confidence Scale (ABC-Scale) Multiple Sclerosis Multiple Sclerosis
C15393 Imaging T1 hypointense lesion count

Hypointense lesion number on T1 without antecedent T1-hypointensity on adequate prior MRI scan

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C14728 Medical Outcomes Study (MOS) Social Support Survey (MSSS) - solution consultation frequency

The frequency of solution consultation based on Medical Outcomes Study (MOS) Social Support Survey (MSSS) modified.

Supplemental MOS Modified Social Support Survey (MSSS) Component of the Multiple Sclerosis Quality of Life Inventory (MSQLI) Multiple Sclerosis Multiple Sclerosis
C15445 Imaging cortical thickness measurement

Thickness of cerebral cortex measurement

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15353 Imaging average retinal nerve fiber layer thickness abnormal scale

This variable signifies whether the average overall retinal nerve fiber layer (RNFL) thickness of the eye is thin compared to the rest of the population

Exploratory Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
C15345 Imaging new periventricular lesion count

Total number of new focal T2-hyperintense brain lesions that are in contact with the ventricular system

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14818 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - use difficulty reading scale

The scale for difficulty reading based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25).

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C14830 Sexual Satisfaction Survey (SSS) - affection scale

The scale regarding during the past 4 weeks, how satisfied with the amount of affection expressed physically relationship based on Sexual Satisfaction Survey (SSS).

Supplemental Sexual Satisfaction Scale (SSS) Multiple Sclerosis Multiple Sclerosis
C14776 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - family scale

The scale related to proportion of time family noticed memory or concentration difficulty based on Multiple Sclerosis Quality of Life Scale (MSQOL-54).

Supplemental Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Multiple Sclerosis Multiple Sclerosis
C14698 Berg Balance Scale (BBS) - unsupport stand closed eyes scale

The scale for assessment of standing unsupported with eyes closed based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities.

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C15418 Imaging gray matter volume fraction value

Volume of gray matter in the brain or ratio of gray matter volume to total intracranial volume or other head-size normalization volume

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C14736 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - lifting scale

The scale related to lifting based on Multiple Sclerosis Quality of Life Scale (MSQOL-54).

Supplemental Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) Multiple Sclerosis Multiple Sclerosis
C15460 Imaging spinal cord lesion location type

Specifies the location of lesions with respect to cord cross-sectional area involving spinal gray matter

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16209 Imaging retinal nerve fiber layer thickness in nasal quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the nasal quadrant

Exploratory Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
C15381 Imaging Gadolinium-enhancing lesion total volume measurement

Total volume of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14826 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - limit activity scale

The scale for limit activities because of vision from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25).

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
Displaying 1 - 25 of 1733

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.