CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 612

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1292-C15381	C15381	Imaging Gadolinium-enhancing lesion total volume measurement	Total volume of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15371	C15371	Imaging new other unspecified lesion count	Total number of other new lesions whose type is not specified	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15376	C15376	Imaging other unspecified lesion count	Total number of other lesions whose type is not specified	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15645	C15645	Imaging new thalamus lesion count	Total number of new lesions located in the thalami	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15363	C15363	Imaging new cortical lesion count	Total number of new lesions located in the brain cortex or lesions in the subcortical WM also involving the cortex	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15366	C15366	Imaging new basal ganglia lesion count	Total number of new lesions located in the basal ganglia (excluding the thalamus)	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15345	C15345	Imaging new periventricular lesion count	Total number of new focal T2-hyperintense brain lesions that are in contact with the ventricular system	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15356	C15356	Imaging new posterior fossa lesion count	Total number of new focal T2-hyperintense brain lesions that are in contact with the posterior fossa (brainstem or cerebellum)	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15350	C15350	Imaging new juxtacortical lesion count	Total number of new focal T2-hyperintense brain lesions that are in contact with the cortex (with no intervening white matter)	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15367	C15367	Imaging cortical lesion count	Total number of lesions located in the brain cortex or lesions in the subcortical WM also involving the cortex	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15650	C15650	Imaging basal ganglia lesion count	Total number of lesions located in the basal ganglia (excluding the thalamus)	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15457	C15457	Imaging spinal cord lesion count	Total number of lesions located at any level of the spinal cord	Exploratory	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15457	C15457	Imaging spinal cord lesion count	Total number of lesions located at any level of the spinal cord	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15372	C15372	Imaging thalamus lesion count	Total number of lesion(s) located in the thalamus	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15357	C15357	Imaging periventricular lesion count	Total number of focal T2-hyperintense brain lesions that are in contact with the ventricular system	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15646	C15646	Imaging posterior fossa lesion count	Total number of focal T2-hyperintense brain lesions that are in contact with the posterior fossa (brainstem or cerebellum)	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15364	C15364	Imaging juxtacortical lesion count	Total number of focal T2-hyperintense brain lesions that are in contact with the cortex (with no intervening white matter)	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15338	C15338	Imaging T2 lesion total count	Total number of focal T2-hyperintense brain lesions	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15423	C15423	Imaging gray matter lesion count	Total number of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15423	C15423	Imaging gray matter lesion count	Total number of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15375	C15375	Imaging Gadolinium-enhancing lesion count	Total number of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15375	C15375	Imaging Gadolinium-enhancing lesion count	Total number of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11933	C11933	Modified Fatigue Impact Scale (MFIS) - total score	Total MFIS score (range: 0-84)	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15333	C15333	Optical coherence tomography (OCT) oculus dexter (OD) macula volume measurement	Total macula volume of the right eye	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15341	C15341	Optical coherence tomography (OCT) oculus sinister (OS) macula volume measurement	Total macula volume of the left eye	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.