CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 612

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1279-C16172	C16172	Pregnant current indicator	Indicator of whether the participant is currently pregnant	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C10980	C10980	Childbearing potential indicator	Indicator of whether the participant is of childbearing potential	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C10813	C10813	Adopted indicator	Indicator of whether the participant was adopted	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1288-C08001	C08001	Family history relative type biological sample in repository indicator	Indicator of whether the participant's family member has donated biological sample(s) to a repository	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C08085	C08085	Sibling alive indicator	Indicator of whether the participant's/subject's sibling is still living	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00705	C00705	Alcohol current use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C08080	C08080	Twin sibling indicator	Indicator of whether the participant/subject has a twin brother or sister	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00708	C00708	Alcohol use related to hospitalization indicator	Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C08076	C08076	Breastfed indicator	Indicator of whether the participant/subject was breastfed by his/her mother	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F2799-C17783	C17783	Grip strength fatigue percent target not attain indicator	Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded	Exploratory	Grip Strength Fatigue	False	Multiple Sclerosis	Multiple Sclerosis
F2799-C10851	C10851	Grip strength test indicator	Indicator whether the grip strength testing was done	Exploratory	Grip Strength Fatigue	False	Multiple Sclerosis	Multiple Sclerosis
F1027-C11991	C11991	Timed 25-Foot Walk (T25FW) - assistive device status	Indicator whether the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Multiple Sclerosis	Multiple Sclerosis
F1027-C11990	C11990	Timed 25-Foot Walk (T25FW) - ankle foot orthosis status	Indicator whether the participant/subject wore an ankle-foot orthosis (AFO) during the assessment, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F2799-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Exploratory	Grip Strength Fatigue	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15469	C15469	Imaging magnetization transfer ratio (MTR) measurement type	Magnetization transfer ratio measure	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15469	C15469	Imaging magnetization transfer ratio (MTR) measurement type	Magnetization transfer ratio measure	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C02400	C02400	Brain volumetric analysis measurement	Measured brain volume in cubic centimeters	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C02400	C02400	Brain volumetric analysis measurement	Measured brain volume in cubic centimeters	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1275-C59019	C59019	Birth weight measurement	Measurement in kilograms of the weight of a neonate at birth	Supplemental	Medical History	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C10576	C10576	Imaging in plane resolution axis 1 measurement	Measurement of axis 1 of in-plane spatial resolution used in imaging acquisition	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 151 - 175 of 612

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.