CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 612

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1285-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1274-C00222	C00222	Job classification category	Category that classifies work performed by participant/subject	Supplemental	Social Status	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16147	C16147	Family history relative death cause text	Cause of death of the participant/subject's relative, if applicable	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15442	C15442	Imaging central cerebral volume measurement	Central cerebral volume measurement	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15442	C15442	Imaging central cerebral volume measurement	Central cerebral volume measurement	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07111	C07111	Center for Epidemiologic Studies Depression Scale (CES-D) - total score	CES-D Total Score - summation of the scores for the 20 items (0-60)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15444	C15444	Imaging change in central cerebral volume value	Change in central cerebral volume	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15447	C15447	Imaging change in cortical thickness value	Change in cortical thickness	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15451	C15451	Imaging change in hippocampus volume value	Change in hippocampus volume	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15455	C15455	Imaging change in thalamus volume value	Change in thalamus volume	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15438	C15438	Imaging change in normal appearing white matter value	Change in tissue integrity in normal-appearing white matter as compared to a reference scan acquired at an earlier timepoint	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15383	C15383	Imaging Gadolinium-enhancing lesion change in volume measurement	Change in volume of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15398	C15398	Imaging T1 hypointense lesion change in volume measurement	Change in volume of all focal T1-hypointense brain lesions (on this scan)	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15427	C15427	Imaging change in gray matter lesion volume value	Change in volume of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F1273-C10676	C10676	Country of residence code	Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Supplemental	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16120	C16120	MS current disease course type	Current Multiple Sclerosis (MS) disease course the participant/subject is experiencing	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C08007	C08007	Diagnosis first given date and time	Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1275-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Supplemental	Medical History	False	Multiple Sclerosis	Multiple Sclerosis
F1275-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	Medical History	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C05404	C05404	Symptom onset date and time	Date (and time, if applicable and known) reported for onset of participant's/subject's symptoms	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C05404	C05404	Symptom onset date and time	Date (and time, if applicable and known) reported for onset of participant's/subject's symptoms	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F2799-C10852	C10852	Grip strength test performed date and time	Date (and time, if applicable and known) that grip strength testing was done	Exploratory	Grip Strength Fatigue	False	Multiple Sclerosis	Multiple Sclerosis
F2848-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 26 - 50 of 612

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.