CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17402 Site name

The name of the site for the study

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C19247 Subject ID

Subject identification ID

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C52339 Subject initial text

The free-text field related to the initials of the subject

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C57037 Fatigue diary entry start date and time

Start date and time for the fatigue diary entry

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C57038 Fatigue diary entry end date and time

End date and time for the fatigue diary entry

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C57039 Fatigue diary day indicator

Indication of Day (also broken down further into hours) within the Fatigue Diary

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Multiple Sclerosis Multiple Sclerosis
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Multiple Sclerosis Multiple Sclerosis
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core Multiple Sclerosis Multiple Sclerosis
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Multiple Sclerosis Multiple Sclerosis
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Multiple Sclerosis Multiple Sclerosis
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Multiple Sclerosis Multiple Sclerosis
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Multiple Sclerosis Multiple Sclerosis
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Multiple Sclerosis Multiple Sclerosis
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Multiple Sclerosis Multiple Sclerosis
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Multiple Sclerosis Multiple Sclerosis
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Genetics Multiple Sclerosis Multiple Sclerosis
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Genetics Multiple Sclerosis Multiple Sclerosis
C58715 Relative biological sample registry placement location

The location where the relative's DNA sample resides, if known. (Indicate "N/A" if location is not known)

Supplemental Genetics Multiple Sclerosis Multiple Sclerosis
C08001 Family history relative type biological sample in repository indicator

Indicator of whether the participant's family member has donated biological sample(s) to a repository

Supplemental Genetics Multiple Sclerosis Multiple Sclerosis
C16194 Biological sample in repository indicator

Indicates whether participant had a biological sample or specimen drawn and banked in a repository

Supplemental Genetics Multiple Sclerosis Multiple Sclerosis
C16195 Biological sample in repository specimen type

Type of biological sample or specimen collected and stored in a repository

Supplemental Genetics Multiple Sclerosis Multiple Sclerosis
C16196 Biological sample in repository study initially requested name

The name of the study for which the biological sample or specimen was initially taken

Supplemental Genetics Multiple Sclerosis Multiple Sclerosis
C16197 Biological sample in repository location name

The location of the banked biological sample or specimen, if known

Supplemental Genetics Multiple Sclerosis Multiple Sclerosis
C16198 Biological sample in repository consent form signed indicator

Indicates whether the participant provided signed informed consent for the biological sample collection and storage in a repository

Supplemental Genetics Multiple Sclerosis Multiple Sclerosis
Displaying 151 - 175 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.