CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 501 - 525 of 612

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1280-C14117	C14117	School repeat grade indicator	Whether the participant/subject ever repeated a grade in school	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16187	C16187	Vaccine type	Vaccination received by pediatric patient	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C17443	C17443	Clinical event or milestone 1 year speech indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking his/her first words by 12 months which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16170	C16170	Menstrual period occurrence indicator	Indicates whether participant has ever had a menstrual period	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C17444	C17444	Clinical event or milestone 2 year word combination indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking in two word combinations by 2 years which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16171	C16171	Menstrual period first occurrence age value	Youngest age the participant had a menstrual period, otherwise known as the age of menarche	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16188	C16188	Vaccine received indicator	Indicates whether participant/subject received the vaccine	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C17445	C17445	Clinical event or milestone 3 year sentence indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking in complete sentences by 3 years which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16181	C16181	Breast fed duration value	The duration of time the participant/subject was breast fed	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16189	C16189	Vaccine hospitalization indicator	Indicates whether participant/subject was hospitalized due to serious complications from vaccine	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C17446	C17446	Clinical event or milestone walk indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of walking by 17 months old which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16182	C16182	Formula fed indicator	Indicates whether participant/subject was formula fed	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16191	C16191	Chicken pox infection age value	The age value of participant/subject when they experienced a natural infection of chicken pox	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16183	C16183	Formula fed duration value	The duration of time the participant/subject was formula fed	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16192	C16192	Vaccination within one month of demyelinating attack indicator	Whether or not the participant/subject received a vaccination within one month of his/her first demyelinating attack	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C00018	C00018	Education service type	Type of educational services received	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16184	C16184	Formula fed to infant name	The name of the formula fed to participant/subject	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C01015	C01015	Physical exam performed indicator	Indicator of whether a physical exam was performed on the participant/subject	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C01028	C01028	Physical exam condition SNOMED CT code	Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C01012	C01012	Physical exam body system result type	Assessment result of each body system examined	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 501 - 525 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.