CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15515 Imaging tissue integrity whole brain measurement indicator

Whether measurements of the tissue integrity of the whole brain were taken

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C16187 Vaccine type

Vaccination received by pediatric patient

 Supplemental Pediatric Developmental History False Multiple Sclerosis Multiple Sclerosis
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant

 Supplemental Behavioral History False Multiple Sclerosis Multiple Sclerosis
C18027 Comment text

Provide any additional information that pertains to the question

 Supplemental Stroop Test True Multiple Sclerosis Multiple Sclerosis
C15409 Imaging change in ventricular volume value

Absolute change in ventricular volume as compared to a reference scan acquired at an earlier timepoint

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C16145 Family history relative birth date

The date of birth of a related family members to the participant/subject

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C14801 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - driving indicator

The indicator for currently driving from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C14711 Godin Leisure-Time Exercise Questionnaire - exercise per week scale

The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly

 Supplemental Godin Leisure-Time Exercise Questionnaire False Multiple Sclerosis Multiple Sclerosis
C53903 Stroop Color and Word Test (SCW) - Color T score

Score (T) of the color test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Multiple Sclerosis Multiple Sclerosis
C15423 Imaging gray matter lesion count

Total number of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C16153 Family history relative type with MS number

For the specified relative type, the total number of relatives diagnosed with multiple sclerosis (MS)

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C14809 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - function scale

The scale of for difficulty function based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C19004 Imaging magnetization transfer ratio (MTR) measurement other text

The free-text field related to 'Imaging magnetization transfer ratio (MTR) measurement type' specifying other text. Magnetization transfer ratio measure

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C16168 Pregnancy self or contribute sperm number

Number of each pregnancy for the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C11911 Modified Fatigue Impact Scale (MFIS) - unable think clearly score

Scale of having been unable to think clearly as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C17455 MS spouse diagnosis indicator

The indicator of whether a spouse was diagnosed with Multiple Sclerosis

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C14817 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - current eyesight scale

The scale for current eyesight based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C02494 Imaging study date and time

Date (and time, if applicable and known) the radiologic study was obtained

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C16176 Hormone therapy indicator

Indicates whether participant/subject has taken hormonal therapy

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C15453 Imaging thalamus volume measurement

Thalamus volume measurement

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C00701 Tobacco use stopped age value

Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

 Supplemental Behavioral History False Multiple Sclerosis Multiple Sclerosis
C14825 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - assist others scale

The scale for needing help from others based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15366 Imaging new basal ganglia lesion count

Total number of new lesions located in the basal ganglia (excluding the thalamus)

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C17394 Berg Balance Scale (BBS) - stand one leg scale

The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 Supplemental Berg Balance Scale (BBS) False Multiple Sclerosis Multiple Sclerosis
C15478 Imaging gray matter lesion technique type

Method used to determine the number of lesions

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
Displaying 126 - 150 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.