CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C15381 Imaging Gadolinium-enhancing lesion total volume measurement

Total volume of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C11932 Modified Fatigue Impact Scale (MFIS) - psychosocial score

Sum of MFIS Psychosocial items (range: 0-8)

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
C19004 Imaging magnetization transfer ratio (MTR) measurement other text

The free-text field related to 'Imaging magnetization transfer ratio (MTR) measurement type' specifying other text. Magnetization transfer ratio measure

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14709 Godin Leisure-Time Exercise Questionnaire - moderate exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing moderate exercise (e.g., fast walking, baseball, tennis, easy bicycling, volleyball, badminton, easy swimming, alpine skiing, popular and folk dancing)

Supplemental Godin Leisure-Time Exercise Questionnaire Multiple Sclerosis Multiple Sclerosis
C16195 Biological sample in repository specimen type

Type of biological sample or specimen collected and stored in a repository

Supplemental Genetics Multiple Sclerosis Multiple Sclerosis
C16151 Child adopted before age one indicator

Indicates whether participant/subject has any adopted children who were adopted before one year of age

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C15411 Imaging ventricular volume fraction value

Ratio of ventricular volume to total intracranial volume or other head-size normalization volume

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C16165 Hormonal therapy stop date

The date and time (if applicable and known) the participant/subject stopped hormonal therapy

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Supplemental Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C17453 MS relative description text

The free-text field for describing the relationship of relative with Multiple Sclerosis

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C15433 Imaging brain volume fraction technique type

Image analysis method used to calculate whole brain volume fraction

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C16174 Menopause indicator

Indicates whether participant/subject is currently menopausal

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C19051 Parents biologically related other text

The free-text field related to 'Parents biologically related type' specifying other text. Type of relation of the biologically related parents

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C14699 Berg Balance Scale (BBS) - unsupport feet together scale

The scale for assessment of standing unsupported with feet together based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C00018 Education service type

Type of educational services received

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C00707 Alcohol consume six or more drinks frequency

The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol

Supplemental Behavioral History Multiple Sclerosis Multiple Sclerosis
C15389 Imaging combined unique active (CUA) lesion number compared to previous timepoint value

Number of combined unique active (CUA) lesions compared to previous time-point

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16131 Clinical event occurrence range

Timeframe of when clinical event occurred

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14792 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty hobbies scale

The scale of difficult in hobbies based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15511 Imaging tissue integrity type performed indicator

Whether the imaging type was performed on specific brain tissue

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C12000 Timed 25-Foot Walk (T25FW) - trial 2 not completed reason

Specify the type of reason Trial 2 was not completed by the participant/subject, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Multiple Sclerosis Multiple Sclerosis
C17441 Clinical event or milestone cognitive learning disability indicator

Whether the participant/subject achieved or experienced the specific clinical event or milestone of having a cognitive/learning disability which is pertinent to the disease or disorder

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C07092 Center for Epidemiologic Studies-Depression Scale (CES-D) - poor appetite indicator

Indicates how often the subject didn't feel like eating in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Multiple Sclerosis Multiple Sclerosis
C17733 Person completing form name

Name of person completing the form

Supplemental Stroop Test Multiple Sclerosis Multiple Sclerosis
Displaying 51 - 75 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.