CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 451 - 475 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14820 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty personal care scale

The scale for difficulty personal care from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C07098 Center for Epidemiologic Studies-Depression Scale (CES-D) - hopeful future indicator

Indicates how often the subject felt hopefully about the future in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) False Multiple Sclerosis Multiple Sclerosis
C11930 Modified Fatigue Impact Scale (MFIS) - physical sub score

Sum of MFIS Physical items (range: 0-36)

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C01550 Temperature measurement anatomic site

Anatomic site on or within the body where the temperature was measured

 Supplemental Vital Signs False Multiple Sclerosis Multiple Sclerosis
C14828 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - home alone scale

The scale for remaining home based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C16126 Acute disseminated encephalomyelitis (ADEM) characteristics type

The signs and characteristics of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject

 Supplemental Diagnosis and Disease Characteristics False Multiple Sclerosis Multiple Sclerosis
C14788 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - overall eye scale

The scale for overall assessment of eye from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C16188 Vaccine received indicator

Indicates whether participant/subject received the vaccine

 Supplemental Pediatric Developmental History False Multiple Sclerosis Multiple Sclerosis
C07106 Center for Epidemiologic Studies-Depression Scale (CES-D) - enjoy life indicator

Indicates how often the subject felt like he/she enjoyed life in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) False Multiple Sclerosis Multiple Sclerosis
C17828 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C15398 Imaging T1 hypointense lesion change in volume measurement

Change in volume of all focal T1-hypointense brain lesions (on this scan)

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C16135 MS full recovery of relapse within year indicator

Indicates whether the participant/subject with Multiple Sclerosis was fully recovered from this relapse/exacerbation within a year

 Supplemental Diagnosis and Disease Characteristics False Multiple Sclerosis Multiple Sclerosis
C14796 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty side object scale

The scale for difficulty side object from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15341 Optical coherence tomography (OCT) oculus sinister (OS) macula volume measurement

Total macula volume of the left eye

 Exploratory Imaging OCT Analysis - Spectralis Report Analysis False Multiple Sclerosis Multiple Sclerosis
C15349 Optical coherence tomography (OCT) Spectralis-Heidelberg performed indicator

The indicator for spectral-domain optical coherence tomography (OCT) (Spectralis-Heidelberg) being performed

 Exploratory Imaging Optical Coherence Tomography (OCT) Information False Multiple Sclerosis Multiple Sclerosis
C15377 Imaging retinal nerve fiber layer thickness in temporal quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the temporal quadrant

 Exploratory Imaging OCT Analysis - Spectralis Report Analysis False Multiple Sclerosis Multiple Sclerosis
C15334 Optical coherence tomography low contrast Sloan letter chart 2.5 binocular count

The number of letters read correctly at low contrast on a Sloan letter chart at 2.5% from 2 meters

 Exploratory Imaging OCT Analysis - Contrast and Visual Acuity False Multiple Sclerosis Multiple Sclerosis
C15352 Imaging average macular cube thickness measurement

Average macular thickness of the cube

 Exploratory Imaging OCT Analysis -Cirrus Macular Thickness False Multiple Sclerosis Multiple Sclerosis
C15457 Imaging spinal cord lesion count

Total number of lesions located at any level of the spinal cord

 Exploratory Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C15374 Imaging retinal nerve fiber layer thickness in inferior quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the inferior quadrant

 Exploratory Imaging OCT Analysis - RNFL Thickness Analysis False Multiple Sclerosis Multiple Sclerosis
C11516 Bladder Control Scale (BLCS) - restricted lifestyle 4 week severity

The scale related to restricted overall lifestyle because of bladder problems as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Multiple Sclerosis Multiple Sclerosis
C10858 Grip strength target value

Value of the target grip strength for the grip strength fatigue trial being recorded

 Exploratory Grip Strength Fatigue False Multiple Sclerosis Multiple Sclerosis
C15417 Imaging change in gray matter volume value

Absolute change in gray matter volume as compared to a reference scan acquired at an earlier timepoint

 Exploratory Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C19247 Subject ID

Subject identification ID

 Exploratory Fatigue/Activity Record and Diary False Multiple Sclerosis Multiple Sclerosis
C15431 Imaging white matter volume measurement

Volume of white matter in the brain

 Exploratory Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
Displaying 451 - 475 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.