CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1288-C16194	C16194	Biological sample in repository indicator	Indicates whether participant had a biological sample or specimen drawn and banked in a repository	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C19048	C19048	Acute disseminated encephalomyelitis (ADEM) clinical course other text	The free-text field related to 'Acute disseminated encephalomyelitis (ADEM) clinical course type' specifying other text. The diagnosed type of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15408	C15408	Imaging T1 hypointense lesion technique type	Method used to determine the total number of T1 hypointense lesions	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15362	C15362	Imaging QA/QC performed indicator	Was image-based QA/QC performed?	Supplemental	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16110	C16110	Symptom associated with new neurologic findings ongoing indicator	Indicates whether the symptom(s) associated with new neurologic findings are ongoing	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C15644	C15644	Imaging QA/QC result	Results of image-based QA/QC	Supplemental	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01519	C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F1305-C14698	C14698	Berg Balance Scale (BBS) - unsupport stand closed eyes scale	The scale for assessment of standing unsupported with eyes closed based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C10813	C10813	Adopted indicator	Indicator of whether the participant was adopted	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16181	C16181	Breast fed duration value	The duration of time the participant/subject was breast fed	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15449	C15449	Imaging hippocampus volume measurement	Hippocampus volume measurement	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14823	C14823	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty indoor activity scale	The scale for difficulty indoor activity from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1027-C11996	C11996	Timed 25-Foot Walk (T25FW) - trial 1 circumstances affecting performance text	Text description of any circumstances that affected the participant/subject's performance on or completion of the trial being recorded, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00712	C00712	Subscribed drug or substance illicitly used category	Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15356	C15356	Imaging new posterior fossa lesion count	Total number of new focal T2-hyperintense brain lesions that are in contact with the posterior fossa (brainstem or cerebellum)	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1305-C14705	C14705	Berg Balance Scale (BBS) - unsupport stand front foot scale	The scale for assessment of standing unsupported one foot in front based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Multiple Sclerosis	Multiple Sclerosis
F1027-C17864	C17864	Timed 25-Foot Walk (T25FW) - trial number	Number assigned for identification to the trial currently being assessed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C18670	C18670	Subscribed drug or substance illicitly used category other text	The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15386	C15386	Imaging Gadolinium-enhancing lesion technique reference name	Name of software package used, website, and/or a citation to a journal article referencing the particular technique used to find Gadolinium-enhancing lesions	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14791	C14791	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty reading close scale	The scale of for difficulty reading close based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07096	C07096	Center for Epidemiologic Studies-Depression Scale (CES-D) - depressed indicator	Indicates how often the subject felt depressed in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16148	C16148	Biological parent twin indicator	Indicates whether the biological parent is a twin	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.